--is common with neuropathy, although spontaneous pain is as well.

Anything that adds stress or compressive forces to already compromised nerves might make them hurt more, but that doesn't mean the exercise is causing the pain.

What other investigations into cause have you had recently? The skin biopsy can document that there is damage to small fibers, but, as you know, it generally does not reveal an etiology.

Hi Glenn,
Doctor Latov had a standard script that runs to test for a known causes, they came negative and was easily told it is idiopatic.

Done genetic testing as well, negative.
Any other test you can recommend? any meds or vitamin or homeopathy you can recommend ? any good doctor or theriepiest any one can recommend?
Can IVIG help idiopatic SFN?
Thanks

I'm sitting here getting 30 grams of IVIG as I post...I have idiopathic SFN...I'll keep everyone posted on any positive developments...a nurse just told me she had a patient w SFN that responded well so I was happy to hear that.

I also excercise a lot and I think that it cause my pain to increase...the only excercise that seems to calm my nerves is yoga...)

Anyway keep positive and hope we start finding our way out of this pain.

Sven

Anyone with weakness or exercise intolerance should try acetyl carnitine. This has proven beneficial effects in the elderly anyway and the HIV community has used it for over a decade now.

Body builders use it in high dose, but people like us may see improvements at just 250mg a day or so. (up to 2 grams if necessary in divided doses). I use Puritan's Pride form, as it it pretty affordable from them.

Carnitine enables mitochondria to use fatty acids when glucose is low. It helps transport the fatty acids across the mitochondria membranes for metabolic energy. I found it very helpful back when I was going to the gym alot, but now I don't use a gym, but still the carnitine helps with stamina and climbing stairs for me now. If I skip a day or two now, I really feel the difference!

Thanks, I took L-carnitine at one point, did not see any effects. How about acetyl carnitine is it much different??
I read that meat contains 80 mg of carnitin. No wonder after eating meat feel stronger.

Here is good brief monograph on carnitine.
Carnitine — Health Professional Fact Sheet

I find the plain l- carnitine less effective (I tried Doctor's Best) not too long ago. Something about the acetyl form seems to work better for me. (however I do notice some acidic vinegary odor sometimes from it on my skin). That is why I went back to the plain L form but I lost stamina on it.

Look up the Juvenon website, as it has lots of information on how carnitine works in the mitochondria especially for aging adults. Dr. Ames did alot of research when offering that product when it was new.

the acetyls i see on amazon are labeled Acetyl L-Carnitine . Is that the name of the good form?