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Old 08-18-2016, 06:53 PM #8
northerngal northerngal is offline
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Join Date: Feb 2011
Posts: 179
10 yr Member
northerngal northerngal is offline
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Join Date: Feb 2011
Posts: 179
10 yr Member
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I went to northwestern and met with Dr Burt to try to get the stem cell treatment done for CIDP. I went through all of the required testing, after reviewing everything he told me that he did not doubt that I had some sort of immune process causing my neuropathy, but he did not feel it was bad enough to go through his stem cell procedure.
There is risk to wiping your entire immune system out, so I guess they want to be sure our condition is bad enough to warrant the risk.
There were people who had success with it on a former CIDP board I was on. It was a requirement that they had failed other treatments before getting into the clinical trial Dr. Burt was doing.
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