Thanks En bloc. The biopsy would be an open one. I'm particularly concerned about pain (the Sfn is already so awful, I worry how this will go during and after) Also healing, with virtually no small nerves in my skin I worry what issues there will be with healing. The skin biopsy site took so long.
The fact that your MRI did not show it too makes me slightly hopeful the biopsy will show what I can so significantly see.
If you or anyone knows why an MRI or the needle in muscle test might not show any of this yet a biopsy would I'd really value your insight. I feel a need to understand this. It's not clear from all I have read.
My main fear is they will somehow find nothing and then I will have to sit back and watch this just carry on and get worse - which it has. I just need to know.