I find the loneliness and isolation of the nld sfn experience to be quite tough to manage lately. I would really value being around others who have some shared understanding. Locally there isn't much at all in terms of support groups, I searched high and low. I did attend a group for those with M.E as this was all I could find locally. Although this isnt my diagnosis we shared the fatigue problem. 😞 It wasn't quite the same though as the shared experiences with those suffering ongoing pain.
I was considering trying to set something up locally for those specifically suffering chronic pain of some sort. I think I could muster the energy to do this if I felt there may be some others out there near me. If this sort of thing was available near to you, would it be something you think you would ever want to go along to? I ask you all hypothetically as you are in the best position. I appreciate I won't be there to whinge on and will instead have to be more pragmatic and positive! 😃
I have to think through everything I consider taking on as I fear the lack of energy I have. Every investment has to be considered wisely which is why I spend time considering these things rather than just getting on and trying it without hesitation.
Any honest words would be appreciated