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Old 07-20-2007, 10:44 AM #21
daniella daniella is offline
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I'm sending thoughts and hugs your way. I'm so sorry for all your going through. If you need anything or even just want to vent I'm here. Please take care of yourself.
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Old 07-20-2007, 10:47 AM #22
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HI Gina, Thank you! I hope you are doing better today. I'm sitting here waiting for my test results to get to the dr.s office this morning. Take care!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-20-2007, 07:36 PM #23
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HI All,
Well my test results aren't back yet.....seems they won't be back till some time the middle of next week. West Nile blood work is sent to Calif. and takes 10 days to get back.
I saw my pain management dr. today. He said it does sound like I had a bad reaction to Fentanyl patch. He prescribed Oxycontin for pain and Hydrocodone for breakthrough pain.
I tried to get my prescriptions filled at the CVS store.....they didn't have either in stock! so I drove to Walgreens and they said they could fill it....so I leave both prescriptions there and run to the grocery store and then come home. The pharmacy calls me then to tell me that the dr. put the wrong date prescription! Of course by this time of the day the dr. office is closed and it's Friday.....so now the dr. can't be reached till Monday! I was not happy! Thank goodness I still have some Lyrica on hand!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-20-2007, 08:16 PM #24
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Default I thought that would be too soon...

to get results!
If it is where I think, and you want to learn more about blood tests than you ever thought you could learn... here is a site:
http://www.athenadiagnostics.com/con...alog/find-test

My tests took over 3 weeks, I was walking on hot coals [in more ways than one, well, you know...] the whole time.

Other aspects of my labs had gone to the Mayo...those took even longer!

Hang in there Roxie! - time, will tell.

As for any change in meds, it's just as well. I've found that IF I start a med on a Friday, and run into problems over the weekend...well the options are to stop the med, wait till Monday to call doc's office, or go to the ER. I usually opt for the first 2? Who in their right mind wants to visit an ER on a weekend nite?

's - j
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Old 07-21-2007, 04:50 AM #25
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Still sending thoughts and healthy wishes. That is so frustrating. Could you have your doc or one on call paged? That is a long time to wait till Mon if in a lot of pain.
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Old 07-23-2007, 08:52 PM #26
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HI All,
Well I don't have West Nile.....but I do have Ecoli (that's a whole other matter ) So I'm thankful that I don't have West Nile. My Rhuematologist thinks the temp. I had and all the other were side effects from the Fentanyl patch. Tonight I started Oxycontin so I'm hoping that works for pain for me. The Pain Management dr. also gave me a prescription of Hydrocodone for break thru pain....which I hope I won't need.
On Wed. I have my first home infusion. I have my fingers crossed that I get a good nurse who is friendly and enjoys chatting.
Hope everyone had a great weekend. We did. We saw the Sicko movie this afternoon and enjoyed that and then this evening, after the temp dropped some, we trimmed trees in the yard and picked up tons of limbs and branches that all the rain and strong winds blew down. Now we have to mow in the morning.......before starts raining again on Thurs.....UGH!!!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-23-2007, 09:05 PM #27
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Default Hi

Gee what's new,holy cow you just can't leave this place ,come back
and once again Holy cow. Glad your tests are back,and hope meds.
work. Sue
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Old 07-23-2007, 09:11 PM #28
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Roxie:

Glad you don't have West Nile.

Hope your home infusions go smoothly.

Be well,

Melody
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Old 07-24-2007, 01:35 PM #29
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HI..... I had a terrible experience last night with the Oxycontin. It caused severe burning in the pit of my stomach. I was up till 4am this morning. I had the same bad reaction when the dr. prescribed Cymbalta 5 months ago. So anyway.....I called the Pain Management dr. and have an appt to see him on Thurs. afternoon.......back to the drawing board!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-24-2007, 02:51 PM #30
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Default Roxie

Sorry about your gut! I know you said you have problems with just ibuprofren, etc... so that other stuff is probably really gonna get ya... I cannot touch any form of opiate at all because of the severe nausea it causes - and even ibuprofen can only tolerate for a day or so (live on tylenol)...... hope they can find something to help you....

Good thing no West Nile though!
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