Did you take it with food or milk,also my Dr. said they were having
some problems with that. I don't take it so forgot to ask what
the problem was,maybe burning in the tummy. Darn it,i 'm sure
they will find something for you,i'm sorry you have to wait. There
going to check the Pig Skin on my leg thurday,hope i don't have
stay,but thinking i'm going to. well oink oink. Let's hope you get
pain free soon. Sue

HI Sue, Tell me about your leg.......I guess that happened before I arrived on this site. Sounds VerY painful! Is it a burn? Dang......why do we have to have all this pain anyway???
I'm in a lot of pain today.......I guess after effects of all the pain all night. I took the Oxycontin with food last night......thinking that would help.

KMEB.......I'm taking Tylenol today and took my Lyrica. Even all that isn't helping today. I may call my dr. and see if he's in yet today.....see what he has to say.....UGH!!!!!!!

Is it to late to call now,i would do it,i was talking to the nurses, when
i was in the hospital. They say the biggest change they have seen is
pain control. My leg is not a burn,but it feels like what a third degree
burn, it's a mess big and nasty. Before they got it all covered,Drs.
just kept coming in to have a look see,and kept taken pictures. ha
I loved watching those poor kids faces. Anyway i'll talk more aout it
after Thursday. Don't be afraid to call your Dr.,boy i'm on Morphine
in small SR doses,it took me 3 years to agree to that. Call now
missy. ha Takee care honey.... Sue

OMG Sue your leg sounds soooooo painful! I hope that Morphine is helping you! Morphine makes me itch.....so I have to take Benedryl with it.
I see the Pain dr. on Thurs....my husband is going with me this time. I'm taking the Lyrica in the mean time and having the infusion tomorrow. Take care girl!

E-coli is definitely a Pain...but the alternatives are far worse!

As for having a nurse [essentially a STRANGER] come and do things...It's really not hard to 'prepare for'? Clean your house if ya can, if not, I'm betting the nurse has seen far, far worse. Provide, if they like, a freshly brewed pot of coffee, and I tend to pick up some cinnamon buns from the local grocery's bakery - just in case.
My nurse & I get along as we both like to watch [w/me falling asleep] the same TV shows for the duration. My nurse often spends time scheduling other appointments for the current or next week and doing lots of paperwork. We chat some, I fall asleep, I wake up, we mite chat more or just watch TV...for the 'duration'. It does go lots faster when you like the person tho...that takes a couple of infusion sessions to get a sense of tho.

GOOD INFUSING TOMORROW!!!!!!!!!! - j

HI J!
Yes Ecoli is a royal pain! I think I'd had it for 4 months. My dr. had given me several meds to help with what we thought was just my IBS acting up. But nothing was working so that's why he wanted to try the new ecoli medication. I'm sure glad it worked!
Thanks for the ideas for the nurse tomorrow. I hadn't thought of goodies but will grab some at the store. I usually don't sleep during the infusion so hope she enjoys chatting! lol
Take care.......I'll let you know how it goes......

I had my first home infusion today. It went really well and the nurse was great. She an RN and hasworks at one of the hospitals in Houston. It was really nice being at home and not at the center today and not having to drive all the way home afterwards!
I sure wish the Benedryl made me sleepy though....I could sleep through half of the infusion! LOL.....but it doesn't.....so I'm wide awake the whole time

Gosh I must really be tired.....I couldn't spell or type correctly in my post! LOL

as it should be....essentially scheduled boredom...and the SLEEPING is good!
You probably feel as if you've gotten a double strong 'cappucino' [from the IVIG] and a double whomp from the benedryl to boot! The good thing about having it all done at home, IS YOU DON'T HAVE to DRIVE home? I have to tell you, HOME is a much safer option? Could one be 'cited' for a DUI when under the 'influence' of LOTS of Benedryl?
TOMORROW you should feel like you could do some KILLER Shopping - promise me, you will do only HALF of what you want to? Save the rest of your engery for your HOME LIFE! Go slow, focus on the 'little bits' to clean, projects to do and life to live....do little bits in little bits...they add up with heaps less stress and wear and tear.
's - j

Hi J,
Yep you're right.....I feel tired and wired all at the same time. I tried to sleep after the nurse left but couldn't relax. I felt like I couldn't wind down. Now my arms and legs are aching and feel like there's heat coming from them....but they aren't really hot.....just feels that way.
I have to see the Pain Management dr. in the morning and that's all I have planned for the day. Mike's taking me to the dr. so I don't even have to drive...Yeah! I'm really glad of that because it's suppose to be pouring down tomorrow.....and the next 4 days.....
My inlaws are flying in Friday afternoon for the weekend. Mike already told them I probably wouldn't be very energetic and that I'm not cooking at all this weekend.....I have such a great husband!