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07-17-2007, 11:01 AM | #1 | |||
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I saw my Rheumatologist this morning.....he said it's not the patch or the infusion.....he thinks it's West Nile Virus!
I'm still running the temp and feel like crap, which he said will last a few more weeks if it is West Nile. He took a bunch of bloodwork and I'll get those results on friday. He said to cancel my infusion for this week until he figures this out for sure and to go ahead and put the patch back on.
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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07-17-2007, 11:29 AM | #2 | |||
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Senior Member
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Oh My Gosh!!!!!!!!!!!!!
Wow, I'm so sorry to hear that. (((((((Roxi))))))) As an aside, I leave a light on at night and it appears to attract the mosquitoes... which I tend to find dead under it in the morning...
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Do you know the symptoms of low vitamin B12.... ? |
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07-17-2007, 12:53 PM | #3 | |||
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Wise Elder
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Oh My God.
Of all the stuff I was prepared to read today, your post was not one of the. Please let us know what happens, okay?? Thinking of you...
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. CONSUMER REPORTER SPROUT-LADY . |
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07-17-2007, 04:08 PM | #4 | |||
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Quote:
I wonder if the drugs you're taking or something else has weakened your immune system? Anyway, I hope you feel better soon.
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David - Idiopathic polyneuropathy since 1993 "If you trust Google more than your doctor, than maybe it's time to switch doctors" Jadelr and Cristina Cordova, "Chasing Windmills" |
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07-17-2007, 04:25 PM | #5 | ||
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We're all pulling for you! The odds are in your favor.
Be well, rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out. . |
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07-17-2007, 06:57 PM | #6 | |||
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Senior Member
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Roxie,
I was thinking today about your symptoms and remembered that you said you had been mowing the yard and that you lived in Texas. The mosquito population is horrific. I wondered out loud to my husband only a couple of hours ago if you had West Nile. Your temperature and Texas was what made me wonder this. I was just blown away when I logged in a little while ago and saw this post. I sure am glad your doctor jumped in and diagnosed this one so soon. Please take care and I'm thinking about you. Billye |
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07-17-2007, 07:17 PM | #7 | |||
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Wise Elder
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I just got this off of the internet. You did have IVIG the other day right?
----------------------------------------------------------------------- West Nile virus infection through blood transfusion is another topic to research, Schafer said. A recent investigation by the Centers for Disease Control identified organ transplants as one such source of West Nile virus infection. The CDC also reports that others develop the West Nile virus infection within several weeks of receiving blood products. ----------------------------------------------------------------------- IVIG is a blood product, right?? If it is West Nile, thank goodness your doctor is one smart cookie!!!! You take care and drink lots of fluids. Melody
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. CONSUMER REPORTER SPROUT-LADY . |
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07-17-2007, 08:02 PM | #8 | |||
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Hi Mel & Billye!
Yes, I'm lucky my dr is on top of things. I do think the IVIG is a blood product. I too wondered if that's how I got the West Nile.....but we do have a gazzillion mosqitoes here with all the rain and every time I go outside I come back in scratching because I've been bitten....so guess we'll never know for sure. I just can't seem to get well. I've been fighting diarrhea for months. The dr. has given me lots of different meds to try to get rid of it. I kept thinking it was my IBS causing it. Finally today he said he thinks I have Ecoli! He said you can get it anywhere when you eat out. I hate to even think I got it that way! So there's a new medication for Ecoli called Xifaxan that you take 3 times a day for 5 days that's suppose to get rid of it....so I have my fingers crossed! If it's not one thing it's another!!!
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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07-17-2007, 08:10 PM | #9 | ||
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Magnate
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here's a Q & A at the CDC web site -
http://www.cdc.gov/ncidod/dvbid/west...a/symptoms.htm Because I'd been active with large and small animals prior to my onset, I had all the ELISA Tests done, and it wasn't either West Nile [I was I guess a 'trial' testee for that test] and Lymes'...Both were negative. I would bet dollars to donuts that it's your docs' way of justifying for extra tests that are not usually done, but which ARE on Liza Jane's list. Keep in mind also, that testing for Lymes' or West Nile, the results are very 'iffy' in their reliability. I speak from a serious awareness...West Nile has been around my region since the get go, as has Lymes'. We have someone in my area recently hospitalized with the 'encephalitis' aspects of it...the individual lives less than 5 miles from my house. It's the first case in the county in 3 years...last year my state had about 8 cases and it's a big state [tho not as big as Texas]. Bug repellants, even the marigold based organics, I'm learning, are not only worth using but safe. If this is the way to get lots of tests done and checked off YOUR LIST, go for it....I hope it's only a reaction to either the patch or to the IVIG... Try both again? Hope you find some relief and feel better! - j |
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07-17-2007, 08:06 PM | #10 | |||
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Member
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David, I haven't seen any dead birds around. I heard on the news to watch for them because they have no resistance to West Nile. My Doctor said I'd be his first case this year.....lucky me! lol
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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