I saw my Rheumatologist this morning.....he said it's not the patch or the infusion.....he thinks it's West Nile Virus!
I'm still running the temp and feel like crap, which he said will last a few more weeks if it is West Nile. He took a bunch of bloodwork and I'll get those results on friday. He said to cancel my infusion for this week until he figures this out for sure and to go ahead and put the patch back on.

Oh My Gosh!!!!!!!!!!!!!

Wow, I'm so sorry to hear that.

(((((((Roxi)))))))

As an aside, I leave a light on at night and it appears to attract the mosquitoes... which I tend to find dead under it in the morning...

Oh My God.

Of all the stuff I was prepared to read today, your post was not one of the.

Please let us know what happens, okay??

Thinking of you...

If you see a lot of dead crows or ravens in the area, that's a good indication that West Nile is around. They have have no resistance at all and it's usually fatal for birds. For people it's usually just an irritation, from no symptoms to like a very mild flu except the very young, very old, or people with a compromised immune system.

I wonder if the drugs you're taking or something else has weakened your immune system? Anyway, I hope you feel better soon.

We're all pulling for you! The odds are in your favor.

Be well,

rose

Roxie,
I was thinking today about your symptoms and remembered that you said you had been mowing the yard and that you lived in Texas. The mosquito population is horrific. I wondered out loud to my husband only a couple of hours ago if you had West Nile. Your temperature and Texas was what made me wonder this. I was just blown away when I logged in a little while ago and saw this post. I sure am glad your doctor jumped in and diagnosed this one so soon.

Please take care and I'm thinking about you.

Billye

I just got this off of the internet. You did have IVIG the other day right?

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West Nile virus infection through blood transfusion is another topic to research, Schafer said. A recent investigation by the Centers for Disease Control identified organ transplants as one such source of West Nile virus infection. The CDC also reports that others develop the West Nile virus infection within several weeks of receiving blood products.
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IVIG is a blood product, right??

If it is West Nile, thank goodness your doctor is one smart cookie!!!!

You take care and drink lots of fluids.

Melody

Hi Mel & Billye!
Yes, I'm lucky my dr is on top of things. I do think the IVIG is a blood product. I too wondered if that's how I got the West Nile.....but we do have a gazzillion mosqitoes here with all the rain and every time I go outside I come back in scratching because I've been bitten....so guess we'll never know for sure.
I just can't seem to get well. I've been fighting diarrhea for months. The dr. has given me lots of different meds to try to get rid of it. I kept thinking it was my IBS causing it. Finally today he said he thinks I have Ecoli! He said you can get it anywhere when you eat out. I hate to even think I got it that way! So there's a new medication for Ecoli called Xifaxan that you take 3 times a day for 5 days that's suppose to get rid of it....so I have my fingers crossed! If it's not one thing it's another!!!

David, I haven't seen any dead birds around. I heard on the news to watch for them because they have no resistance to West Nile. My Doctor said I'd be his first case this year.....lucky me! lol

here's a Q & A at the CDC web site -
http://www.cdc.gov/ncidod/dvbid/west...a/symptoms.htm
Because I'd been active with large and small animals prior to my onset, I had all the ELISA Tests done, and it wasn't either West Nile [I was I guess a 'trial' testee for that test] and Lymes'...Both were negative.
I would bet dollars to donuts that it's your docs' way of justifying for extra tests that are not usually done, but which ARE on Liza Jane's list. Keep in mind also, that testing for Lymes' or West Nile, the results are very 'iffy' in their reliability.
I speak from a serious awareness...West Nile has been around my region since the get go, as has Lymes'. We have someone in my area recently hospitalized with the 'encephalitis' aspects of it...the individual lives less than 5 miles from my house. It's the first case in the county in 3 years...last year my state had about 8 cases and it's a big state [tho not as big as Texas]. Bug repellants, even the marigold based organics, I'm learning, are not only worth using but safe.
If this is the way to get lots of tests done and checked off YOUR LIST, go for it....I hope it's only a reaction to either the patch or to the IVIG... Try both again? Hope you find some relief and feel better! - j