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09-29-2016, 01:41 PM | #11 | ||
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For people with these diseases it may well be an okay diagnosis because those diseases may well play games with the brain that affect the muscles and the nervous system. But in your case I wouldn't accept a diagnosis of Fibro when my small nerve fibres are being damaged. Keep fighting your corner - there will be answers and in those answers lie your treatment options I feel.
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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"Thanks for this!" says: | Cliffman (10-01-2016) |
10-18-2016, 09:52 PM | #12 | ||
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Neurologists vary in their interest in peripheral neuropathy. Sorry you got a dud. I don't have a great method for finding good doctors, but one starting point is the doctor's directory at the Foundation for Peripheral Neuropathy web site. How To Find A Neurologist In My Area | List of Neurologists It seems you're in New York? Several docs there. If you want someone who also does research, you can run each of their names through PubMed and see if they've done any PN research. Home - PubMed - NCBI
This place looks interesting, all the docs have indicated that they're interested in idiopathic neuropathy. The Columbia Neuropathy Research Center You don't even have to limit yourself to New York. The department of Neurology at Yale has some focus on PN research--though I'm not sure how to find a good clinician there. If you have a good general practitioner/primary care doc, he or she could be a good person to ask.
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