Well, as far as the cause... that hasn't been determined yet. Just going on test results that point to a systemic immune mediated problem. I went to a gastro in Friday and she is running some tests for parasites, and more blood work, so we'll see if she can help. As far as what happened to all of us, I am waiting for my genetic work up to be done at Columbia. The results will probably be back in a month. There are definitely genetic predispositions to autoimmune liver stuff. We might never know the trigger, but hopefully will find a treatment.


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I'm disgusted with the medical establishment right there with you! Well, I hope this ultimately places you on a better path to finding some treatment for you and your children. I know what it's like trying to find the cause and coming up short. I hope that change for you now. :)

I see that some of you are from the New York City area. Did you have any 9/11 World Trade Center exposures back in 2001-2002, which would include north brooklyn, western queens, staten island, eastern new jersey as well as manhattan? Studies are showing connections between world trade center exposures in 2001-2002 and peripheral neuropathy, autoimmune illnesses and liver and kidney problems. something you might want to look into if you were exposed.