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Old 10-07-2016, 01:30 PM #1
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
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8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by echoes long ago View Post
You need to assertively convey that message that you want to have your symptoms treated aggressively. You are better off finding out now whether she will or not and if not find someone who will. With PN, if the cause is treatable and before too much irreppable damage is done time is of the essence
Thanks - yes I'm absolutely aware of this (numb around eyes and tinnitus are a great incentive) - hope she won't soft soap me but if not the new rheumatologist will hopefully put her right. I will phone the helpline person from the British Sjogrens Syndrome Association and get names of SS specialists if I feel this problem is not going to be properly addressed.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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echoes long ago (10-07-2016), en bloc (10-08-2016)
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