Sorry to post again so soon - and I have posted this on the Sjogrens Workd Forum too - but as some of you know I'm seeing my neurologist next week and have been focussing on symptoms and questions for her. While this has been preoccupying me - I have suddenly twigged that I may have this mononeuritis multiplex going on rather than simply a "presumed" small fibre neuropathy.

To my surprise, my fingertips started itching and stinging badly a few weeks ago on both hands. I posted about a neuropathic itch here. I already had noticed a big escalation in pins and needles in both hands, starting in fourth and fifth finger knuckles. When this started, months ago now, I assumed it was the all part of the Small Fibre Neuropathy and that this was a Sjogrens flare up. It is also affecting the area around both eyes in the form of numbness now too - and has been affecting feet and legs for 3 years or more. I assumed it was RA related as did two neurologists - so I've been passed back and forth for ages now. I have had a sharp pain if I press the inside of my elbows for years but this has also suddenly worsened - especially in my worst affected right arm.

Anyhow now I have a confirmed diagnosis of Sjogrens Syndrome - thought to be my primary disease - I feel a bit alarmed by this neuropathy ramping up so dramatically in both arms and waking me in excruciating pain during every night when I try to move my pillo or duvet and 4th and 5th knuckles are on fire in both hands. The skin on both palms has rapidly become thick and is turning s yellow under my pinky finger. Could this be mononeuritis multiplex now I wonder?

I think it wil have to take precedence over everything else with the neurologist next week if so!