| Starburst |
11-20-2016 04:51 PM |
Quote:
Originally Posted by JoannaP79
(Post 1229063)
HI Starburst,
I found the skin biopsy quite uncomfortable, it was the local anaesthetic injection mainly.
Having that diagnosis has been helpful in accessing a trial of treatment. Also, it has supported my health insurance claim. More importantly it affirmed in writing with no room for error what is going on. I feel like I am often doubted, I've had anxiety thrown at me as a cause of the pain I described and a recent suggestion of psychosomatic with regards to other issues I now mention. For me it was essential I had this proof.
If you have a clear diagnosis without the biopsy then that is great.
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It's looking even less clear at the moment. The neurologist felt my lower limb symptoms are more to do with blood pooling and "stretchy" veins due to Ehlers Danlos Syndrome. He also wants to check again for carpal tunnel for my hand symptoms. So, I'm awaiting a brain scan and more nerve conduction studies. He said he would want a biopsy if these don't shed any light. :( |
