I recently read an article that Dr. Gott claims to state that vicks vapor rub rubbed all over the feet rids the pain of neuropathy?? My husband who is suffering terribly from this due to chemotherapy tried it...and well so far nothing..anyone heard of this or have tried it?
Thanks
Jolene

Wow, this is something to remember!

Thank you!!!!!!

Dr. Gott obviously never had severe neuropathy pain. That's like trying to kill an elephant with a flyswatter. I am so sorry your husband is suffering. There are drugs that many of us find helpful in several categories. It sounds like your husband needs a doctor who is willing to work with finding the best drugs to help him. I use fentanly patches. Fentanyl is a synthetic morhpine. And I also take Lyrica, which is an anti-seizure drug that is used for pain control. I hope he can get relief soon.

My husband has been on every med that we know of...from Lyrica to 2700 daily of neurotin...from codine, to methadone to percacets...nothing touches this pain...any ideas...and how about more info on this patch...how does that work..and does the doc precribe it?
Thank you

The fentanyl patch is prescribed by a physician. It is a synthetic morphine, and the patch method of delivery keeps it in your system constantly. It comes in a variety of strengths. People use anywhere from 25 micrograms to 400 micrograms, and change the patch every 2 or 3 days. If your husband did not get relief from methadone, he probably wasn't given a high enough dose. Some doctors are uninformed about prescribing pain meds. You may need to go to a pain specialist.

I'm so sorry your husband is in such pain. I really am.

((((((((Jolene)))))))

Years ago, when my feet were first numb, I used to wear these flip flops that had little protrusions all over their soles (the bed where your foot sits, is what I mean) ... my plan was to stimulate my feet back to feeling.

It's so dangerous when you don't have feeling in your feet... for some reason I never had as much pain in my feet as I did in my right thigh. And I never did understand how when my thigh felt wooden and numb, it also hurt so much.

Tonight I can move my toes -- always cause for excitement for me -- but today I had two B12 shots.

I mention that because I think the reason that B12 got rid of the PN in my thigh was that I had sOOOOO much of it.

(I take Milk Thistle to cleanse my liver of the cyano ... )

The shots are such a drag... but I am so grateful for them...

If you could get a major prescription for B12 injections that you or your husband give to him... of that I would be really hopeful.

(((((((((Jolene))))))))

(I'm going to get the vicks because one of the problems I have now is that my feet don't seem to adjust to temperature very well... so I don't realize they are cold, and then they start hurting... but as I say, not so significantly as your husband's pain with his feet.)

For me, I think it's the stress... Happily, though, I'm making a bit of headway with the appeal stuff.

Jolene 520
My pain in 2000 was 15 and a friend told me to find a chiroprator with a machine that put out at least 400 volts. I did and the first 4 could not feel a thing. Slowly each time i had to decrease the voltage. After 44 treatments my pain was 3.I have been using a TENS unit for the last 7 years and 30 mg of morphine a day. My PN was caused by taking Zocor.

I hope this helps your husband. George

Don't mean to sound ignorant, but can you tell me what "cyano" is?

Hi, I'm sorry about your husband. My mother suffers from SFN she has also been undergoing the same horrible pain. IVIG, has helped my mother tremendously for a few months, she even would forget to take her pain meds. Although, unfortunately after several months, the therapeutic effects began to stop. Fortunately for you, her doctor claims that this is not normal and typically doesn't just stop working. Also, I have been doing my own research and found a researcher at Penn State. Dr. Zagon, who's research focused on the therapeutic properties of LDN (low dose nalextrone) for autoimmune. The medicine was originally used for opiate/alcohol dependence disorders. I spoke to him directly about this drug and I quote he said "it should be a winner". Although, the only downside is very very few pharmacies carry this drug. Only, because it needs to be compounded on site which requires a differentiated pharmacy. If you happen to be from NJ or NY. I have an extensive list of physicians who are familiar with this drug and are willing to prescribe it. Hope this helps.

Ralph

I gave LDN a 6 month trial, could NOT get it to work for me. Never got beyond .5mg and did have a day or so of HORRID constipation. I was taking and trying so much to NOT do a hip replacement...even this LDN. There are yahoo LDN groups and many with MS claim it helps but I gave it a real run and gave up.

BTW: I am using the Vicks nightly and will see how it goes...last night I had two little bouts of toe pains and got up and rubbed more Vicks and got back to a good sleep. I will do the Vicks during the day too and see how it goes.