Have you thought about going to John Hopkins to see if they can find out what is wrong?

I've been considering mHBOT too. The only thing stopping me is I found out I was claustrophobic during an MRI. Not good. I have heard people saying Cumanda helps with the Bartonella symptoms, mainly the neuropathy. I have ordered some. I was able to get generic Mepron and my insurance covered the whole thing. I paid $0. I was shocked. It is definitely killing Babesia. So another layer is being chipped away from the onion.

By the way, if you are still having neuropathy after treating Lyme, it's probably Bartonella. Bartonella is the one most often associated with neuropathy.

For everyone else on the forum - you don't have to have a tick bite to get Bartonella. You can get it from a cat scratch too. The testing is really poor for Bartonella as there are a lot of different strains and they only test for one. So you could have a different strain and it won't show up on the test.

Yes, I've considered, but I've had a full-blown neurological work-up by a very well-respected head of neurology at another Baltimore hospital. When I considered getting a second opinion from Hopkins, I found this when looking into it. Given that I fall into this category, I opted not undergo more drama at that time.

Johns Hopkins Neurology and Neuromedicine: Small Fiber Sensory Neuropathy

"A small percentage of patients with SFSN experience sub-acute onset sensory disturbances diffusely over the whole body, including the trunk and sometimes even the face. These patients have non-length-dependent SFSN and almost all cases are idiopathic."


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"sub-acute"... would be great news, right, as it would mean it would go away and not be chronic ?