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Old 11-20-2016, 04:54 PM #8
Starburst Starburst is offline
Junior Member
  
Join Date: Sep 2015
Posts: 32
8 yr Member
Starburst Starburst is offline
Junior Member
 
Join Date: Sep 2015
Posts: 32
8 yr Member
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Quote:
Originally Posted by kiwi33 View Post
Hi Starburst

I know somebody who lives with Ehlers-Danlos Syndrome.

This UK-based site might help you in talking with your doctors Ehlers-Danlos syndrome - NHS Choices.
Thank you very much. I'm lucky that I'm seeing a specialist who has done a lot of research in this area and he's the top doc. I've got another 2 month wait but I know it'll be worth it. My autonomic specialist told me that he has no doubt this is the cause of my issues but I'll need the formal diagnosis to access all the important treatment such as; specialist physio.
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disorder, due, neuropathy, sensorimotor, told

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