[hopeful]

This may sound like a crazy question but someone just asked me and I didn't have an answer.

I've been suffering with full body neuropathy for 8 years now. It is always so much worse in the cold. I know when it is raining or snowing it has to do with the barometric pressure. Someone just asked why it is worse even if I'm in the heated house.
.

Does anyone know the answer to this question??

[echoes long ago]

good question...i dont know. its just the opposite for me. i am worse in the hot weather, my feet swell even more, more pain. If i am out in the cold and my hands get cold they hurt very badly, but just being exposed to the cold in general if i keep my hands warm, doesnt affect me like the heat does. I have large fiber PN though not small fiber like you.

[hopeful]

Echo so I long for the summer and you long for the winter. Wish we could both feel well in all seasons!

[mskari85]

I can relate. I have full-body small fiber neuropathy - the bane of my existence. I also live in Minnesota and we have HUMID hot summers and horrible cold, dry winters. I've only had neuropathy for a year so I can say I've experienced every season now. Winter and summer are bad. Spring and fall was fine. This morning it was -25 and I felt like every square inch of my body was being attacked by fire ants. My raynaud's is also out of control. I don't know why it also happens inside, but I can tell you that weather extremes of humid hotness or dry coldness do make my neuropathy 1,000% worse.

[hopeful]

Fire ants is good description. I always say a million bees stinging me all at once. I live in PA. It doesn't get as cold here as it does where you are. I keep saying I need to live somewhere warm but I would never leave my kids behind.
Its crazy how it's gets cold and my pain level gets a lot higher!

[MikeK]

I can attest to having the temp go from a low of 6 to a high of 59 back to a low of 15 from Friday to today makes me miserable.

And people ask me why I want to move

[Protector]

I also have small fiber full body. I'm in lower NY so we get 4 good seasons here. I have found I feel somewhat better in the summers, but it may be more psychological.

During the summer, I'm out and about trying to keep active and have more frequent periods when my symptoms are not front and center in my mind.
In the winter while often homebound a good deal of the time, I have much more time to notice my disturbing symptoms. I think that can exacerbate them.

I also have become much more sensitive to extreme temperatures, but specially the cold. My hands become painful very quickly when it's cold out. And my skin has gotten so dry in the last year it looks like I aged 20 years in the last 12 months. So living in a dry heated house in the winter is the worse for me. I definitely prefer any season over winter.

[pinkynose]

Originally Posted by echoes long ago

good question...i dont know. its just the opposite for me. i am worse in the hot weather, my feet swell even more, more pain. If i am out in the cold and my hands get cold they hurt very badly, but just being exposed to the cold in general if i keep my hands warm, doesnt affect me like the heat does. I have large fiber PN though not small fiber like you.

I just got back from being in cold weather for a few weeks and my burning symptom was much reduced. Now I'm back in the tropics and my burning symptoms have revved up more then a notch!

[hopeful]

It's interesting how some of us can't tolerate cold and the heat is difficult for some. I can't figure this how thing out!