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-   -   Some days I just want to give up (https://www.neurotalk.org/peripheral-neuropathy/24246-days.html)

rose 07-22-2007 05:28 PM

Iron and B12:

Who knows what the body can do to repair itself when it gets what it needs. I wouldn't bet on it or against it. I do know some docs who believe it can happen occasionally. Also to consider is, did your menstruation status change around that period (no pun intended)?

Hair:

Too little B12 or a thyroid problem can cause hair to fall out.

rose

rose 07-22-2007 05:30 PM

Sue,

Kudos are in order for both MrsD and Glenn. MrsD is a dear encyclopedia and Glenn is downright brilliant! :D

rose

dahlek 07-22-2007 06:19 PM

About the prenatal vitamins?
 
I switched to them because all other multi-vites, combined with other supplements had WAAAY too much B-6 in them! I'd taken a good look at all of my vitamin regimen about this time last year and found that the B-6 was 'sort of' an add on in four supplements other than the multi-vites. I was getting over 8 TIMES the suggested normal..of '6' and excess '6' can aggravate neuropathies.
The Prenatals had the least, and, I can always supplement B-12, calcium and what-all-ever separately and ultimately have better control overall. It does mean taking lots of pills...BUT, compared to my prior regimin, the number of pills hasn't changed, just the quality of what is going into me.
Julie, the only other thing that comes to mind it to get those thyroid glands check out by a good endocrinologist!
When you have all this other 'stuff' going on, things can have a slight ripple effect on the Thyroid...that was my case...and sooo much is explained now I've done the 'tests' and gotten a new additional diagnosis [albiet harmless once treated]...It explained [that diagnosis] sooo much.. no other way to put it..I was blaming it on the neuro meds, which were in part contributing...but the body is one very complicated and quirky non-machine! If one little BIT goes off kilter, well, it's like dominoes? Check the endo aspect off your list and stop the dominoes from falling! :hug: 's in heaps - j

ConsiderThis 07-22-2007 10:02 PM

Quote:

Originally Posted by shiney sue (Post 127265)
I come from a long line of Nurses,after i retired well 2 more nieces
have decided to get into this field. Oh well i hope they survive!!
There was always a dicussion about fingernails and health. My
Grandmother use to say look at your nails there are answers there.
So you have brought back a lot of menories. I have not answered
sooner,because i have been reading your site, it was very interesting
and you put so much into it. Thank you and i will try the Vit. C.

Six ft. wow reminds me of my Mother she was very tall as well and
very pretty ,and so are you. I am 5ft 2 and at my age i don't you
get taller just wider. Ha With the Sjoren's you have so many teeth issues
and my biggest is fear of the Dentist. But when i get over this leg
thing,off to the boogie man i will go. Did you ever see the post j put
on the Dental forum it was interesting. Well thanks again oh and Mel
got brave and went to the dentist,she took her whole family,but she
did it,so i'm proud of her. A lot of strong people on Neuro Talk. :) Sue

Hi Sue,
Very interesting about your grandmother. I'm very curious what her background was... ???


My Polish grandfather knew a lot about health and talked about it a lot. He was grocer who had a garden that he loved. I think the whole time I knew him he was retired. He lived to just days shy of 100.

But I don't think I ever heard him mention fingernails.

He was a very placid man who smiled a lot and never lost his thick hair, though it did get white.

I'm going to go read your post in the dental forum now.

I've been avoiding that forum because I can't do anything about the dentist until January when I can refinance... I hope I can refinance. :)

I'm so glad you like my site. Thank you for saying so.

:)

(Good luck with the vitamin C... I would love for you to report that your hair stopped falling out.) :)

Julie K 07-23-2007 01:48 AM

Hey everyone, I just want to say thanks for all the advice. I am checking out as much as I can on the vitamines and web sites mentioned here. I have never heard of "porphyria". But boy do I have a lot of the symtoms. I will be learning all I can about it and bringing it up at my next dr. visit. I am also looking more into the B-12 and other vitamines suggested here. I am open to everything, but I always like to research and check it out as much as I possible can.

Hope you are all having a pain free day. Mine has been a little rough today, but I do hope to get some sleep pretty soon.

jarrett622 07-23-2007 09:36 PM

Quote:

Originally Posted by Julie K (Post 126627)
Today has been one of those down days. I just want to cry all day. I am so tired of hurting. I keep telling myself tomorrow will be better. I haven't slept hardly at all this week. Which probably doesn't help how I am feeling.

Then I tell myself "Others are suffering more than me, quit feeling sorry for yourself". But it just doesn't really help how I am feeling. I want to be brave and strong but somedays are just so hard. I am strong in my faith, but somedays it just feels like I am walking alone.

I have a husband of 27 years who is very supportive, but he has got to get tired of dealing with my illness.

I am sure plenty of you go through the same thing. How do you shake it or do you just bear with it and know a better day will come?

First of all :hug: You're not alone. It gets so frustrating. I know that my pain is nowhere near the level it used to be and there are many people here in far worse condition than I am. But when I can't sleep because of the burning and tingling and the RLS type symptoms it doesn't help does it. I almost think the pain would be tolerable if it only bothered me during the day. I'm usually busy enough to ignore it. It's at night that it bothers me. And I *hate* that!

I just ride the bad nights out. That's all I can do. I have Tramadol and I use it. Thank goodness I get almost 100% relief. It does make for a depressing day the day after a bad night though. I'm so tired I can't stand it. I don't cope well with even a little sleep deprivation.

Yes, I try to keep focused on the fact that this too shall pass. It always does. But lately I've been thinking am I going to have to put up with this for the rest of my life? And is it going to eventually get worse? That's been getting me down a bit. :(

Julie K 07-26-2007 01:02 PM

Well this is very depressing!
 
I had blood work done last Friday for my B6 after having cut it down to 25mg a day. I am still toxic. My doctor is having me stop taking it all together and test again in 4 weeks. My doctor is thinking we are going to have to get a dietician to help formulate things so that I am not toxic. Without the B6 I am deficient and with it I am toxic. Why is my body so sensitive?

daniella 07-26-2007 01:52 PM

Hi. I'm sorry your having such a hard time still. I will say I have seen a nutritionist for 12 years on and off. Not for this issue but for my ed recovery. I have seen many and there are some good and some bad. Mine currently is awesome. I stress this greatly though to find one that specialises in your needs not just a random one. With my recovery I had special physical needs and mental and without the proper guidence it would of not worked. Good luck

rose 07-26-2007 04:56 PM

If you are taking pyridoxine hcl (which is the form used in most supplements), you may be one of those who cannot convert it to the necessary form (P-5-P). I would stop altogether for a while and then use the P-5-P form only.

rose


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