Originally Posted by heb1212

JoannaP79 - My heart aches for you because I know what you're going through. I could have written this post. I have extreme nerve pain, burning and paresthesia every place you have described, including my face, nose and teeth. Most recently I've experienced severe pain shooting down both my arms and through the carpal tunnel area into my hands and fingers. I too am terrified that I'm moving from just horrific pain to becoming paralyzed. I don't know if the pain is what is incapacitating me or if there's now a truly neuromuscular manifestation of some sort and that my condition is progressing. It's so horrendous that last weekend I just sat rocking and whimpering. I barely hang in there, just like you. My strength is found in my children's faces. Also, like you, there's very little in the way of a true diagnosis, except post-viral central sensitization. I say in my head daily that I can't believe anyone has to live like this. I have very little in the way of advice except to find medications that can at least take the edge off the pain. I live in a state where medical marijuana has been approved, and I intend on seeking this out next. It's very easy to drift into a very dark place having to cope every day. I force myself to stay busy the best I can - working, taking care of my children, maintaining my house, visiting with friends here and there, though my standard in every area of life has been greatly diminished. I struggle with resentment and grief, especially in that this is invisible to anyone around me. So I'll end this where I started - that's my heart aches for you. Consider this a hug

Originally Posted by Healthgirl

I can only say that I understand how you feel. You are not alone. This is so terrifying and is extremely difficult to live with. Everything said in response is also how I feel. I've been like this for almost 3 years and still hoping for answers and treatment or some light at the end of the tunnel to the end in the physical pain and symptoms.