Hi JoannaP79:

I have a Medicare plan that pays for anything and everything. So I get every test possible. Maybe a good thing, maybe not so good.

The thing about CMT, which I don't have, is that it can't be stopped or treated. So, personally, I wouldn't have bothered with the test, but it was ordered and I had it.

When I was tested, some genetic 'anomaly', not related to CMT, showed up, so the Rheumatologist that ordered the CMT test sent me to a geneticist. She said that the 'anomaly' was unknown as to effect, and so I should just ignore it.

When you reach the frontiers of Immune Disorders, as you have, you begin to appreciate how much is unknown. My husband is a research Immunologist and would be the first the tell you that not only do we not know how the system works, but attempts to 'control' the system would probably only lead to further problems.

Here is a link to the CMT Association:

What is CMT? | Charcot-Marie-Tooth Association

Hugs, ElaineD