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Old 07-22-2007, 01:21 PM #1
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Default toxic neuropathy

Hi,
Since I'm new here, I might have questions that you deal with, many time in the past.Since I'm not an English speaker - it is difficult for me to go throght the history of this forum.
What do you know about Toxic neuropathy. Is it progressive? can one proove that his neuropathy is because of toxins? What tests do I have to do? Is there any symptomes that are characteristic to this kind of neuropathy?

I need your help and support. In my country - there is no supporting group for PN. My doctors hardly know what to tell me and I have millions questions...

have a good day

Rina
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Old 07-22-2007, 03:10 PM #2
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Hi again Rina

I do not know if it will help but can you please tell us what country you live in please. There maybe someone here with some knowledge of your language.

We would so like to help you but you seem to have some knowledge because you type to us quite well. There are papers that deal with toxic neuropathy and perhaps someone could help if we know where you are.

Take care

Tony
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Old 07-22-2007, 03:43 PM #3
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Default Hi

I agree Tony if you could tell us were your from someone might
make it easier for you. I can tell you even in the U.S. there are
many places that don't have support groups,so you either start
one or come to NeuroTalk. Are you taking about getting PN from
envonment surroundings or Meds. Please keep posting Sue
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Old 07-22-2007, 05:23 PM #4
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Default Rina, there is soo much to learn!

Read the stickies and asorb what all you can...start with the very first and learn all you can till you get to the last page. Thesey can help you get a 'background' as to how PN's are described by docs and various diagnosis and treatment approaches.
Here is the key to the 'stickies':
http://neurotalk.psychcentral.com/showthread.php?t=177

Here is a website paper on specifically toxic neuropathies:
http://www.emedicine.com/neuro/topic378.htm

The one good thing about this website is I beleive you could have access to the site in your own language...That might help, but you would STILL have to get a 'grounding' in the terminologies used...It took ME a very long time to learn the medical languages...then understand what all IT ALL means!

I hope this helps!? - j
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Old 07-22-2007, 05:32 PM #5
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Default

Good advice. And it is worth doing, because when toxic exposure (or other cause of nerve damage) is removed, the body can improve.

Best wishes,

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 07-22-2007, 05:47 PM #6
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Hi Rina, the links below should be a start

As far as detecting it, there are tests for the various heavy metals and pesticides etc.

As far as proving it, it depends on what it is. If it is something rarely found outside of a workplace for example, then it is easier. If its something like mercury or lead which is more common, then it is much more difficult Plus of course the laws in your country may well be different from the laws here as far as standards of proof. That you would have to ask a lawyer in your country.



http://millercenter.uchicago.edu/lea...c/toxins.shtml http://findarticles.com/p/articles/m...601001045/pg_4
http://www.neuro.wustl.edu/neuromusc...ther/toxic.htm
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Old 07-23-2007, 06:59 AM #7
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Default many thanks to all of you

Dear friends,

First thanks for the complements for my English - I'll tellit to my English teacher. (She didn't think so...)
I'm from Israel, and the knowlegde here for neuropathies, especially without any reason, is dull. My doctor told me since I'm not diabetic - it is in my head - all those complains of nimbness, pain and parashtesia. (All my test were normal - NCV, QST and blood tests).
Since I'm a chemist - I thought it might be because of my exposure to some chemicals at work.
I read most of the articles you advised me to read. Some were new to me with good information - that if the reason is toxic - so it is sensory - which what I have.
About supporting group - I think of creating one here and my neuro' is willing to help me. But meanwhile - I need your support and learn from your experience.

Many thanks
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Old 07-23-2007, 08:25 AM #8
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Default In addition

Dear friends,

In addition - there is no information, at least I didn't find one, of how long it takes to the nerve system to rebuild itself after taking off the cause for the neuropathy? (In my case, as I told you in another place - my neurologist said it is snsf without prooving it in the tests. I don't know what he meant by this.

All the best to all of you
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Old 07-23-2007, 08:40 AM #9
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Rina:

The first thing they should do is run a Heavy Metal Toxic blood test on you. Because you are a chemist, that should have been the first thing they did. Since you are not a diabetic, please tell us about your family history.

Anybody have any auto-immune disorders in your family?

And believe me, this is not in your head. Your doctor should know better than to tell you this.

You've found friends here. Don't give up!!!

Melody
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Old 07-23-2007, 10:50 AM #10
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Default Hi

My son and his wife visit family and friend every year in Israel,
They love it there and you are doing very well,silly English Teacher.
What Mel said makes so much sence. And PN is not in one's head.
Any way you can you Get a new Neuro. Dr,a second opinion??
Sue
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