FAQ/Help |
Calendar |
Search |
Today's Posts |
12-30-2016, 01:16 AM | #11 | ||
|
|||
Junior Member
|
A quick response - I have entirely changed my diet since the summer when my PN got really bad and spread to practically everywhere. I have an autoimmune disease and I went on a paleo ketogenic diet. I do find that this really helps me, but the neuropathy does seem to be worsening, although diet keeps symptoms minimal - hard to explain.
I will tell you this, I don't think many people who have successfully addressed their neuropathy come back to share the good news on the internet. I was disheartened looking around for success stories too. I have to think that a lot of people either successfully find a "new normal" with neuropathy or address it all together. Of course not everybody does, but don't let it make you feel doomed. |
||
Reply With Quote |
"Thanks for this!" says: | Chicosalt (12-30-2016) |
12-30-2016, 01:32 AM | #12 | ||
|
|||
Junior Member
|
Lots of interesting information to synthesize into my current supplement/diet routine; thank you so much.
I'm taking Fistfuls of pills: CoQ10, R-ALA, NAC, AL Carnitine, Benfotiamine, Methyl B12, a Complex B, K2, D3, Omegas, Evening Primrose, along with Lexapro (for years even before PN). Most I've researched; lots of Doctor's Best. I think I have it all covered, and would actually really like to cut out few. Is Taurine recommended? Again: not diabetic at all. I also have life long anxiety, early osteoporosis, high cholesterol and now PN. I'm reading that all of these could be related to gluten and/or other dietary factors. I will stick to the GF, low sugar, no processed foods and can drop corn, coffee, dairy and diminish salt. It's just so hard when told it'll take a year to know. Nothing I do so far has helped, nor have I really noticed a "flare." Still reading, listening, crunching all ideas- THANKS!
__________________
Ars longa; vita brevis. |
||
Reply With Quote |
12-30-2016, 01:48 AM | #13 | ||
|
|||
Junior Member
|
Thanks, mskari85: I suspect you're correct about people returning to post with good news. Even I, with angst, was hesitant to post here (for a year!), until I realized that I might glean some good info. Indeed I am more scared that hurting today. I'll make a promise to myself and friends to get back when I have some good fodder to share!!
And thanks, Protector and MrsD: GREAT idea about the food and symptom journals. I've got a rough journal going, but will plan to be more comprehensive in 2017. Good New Year's Resolution! And finally, Protector: You are SO interminably right!! As most of us know, evenings and nights are the worst- time to pay attention to every little ache and pain. I am quite a busy girl otherwise; wonder how to keep "dancing" until bedtime!
__________________
Ars longa; vita brevis. |
||
Reply With Quote |
12-30-2016, 09:32 AM | #14 | ||
|
|||
Junior Member
|
Chicosalt,
Be careful of the amount of B6 supplementation you are receiving from the B Complex. The recommended daily value is 2mg. Some B Complex vitamins have much more than 2mg. If you search this forum for "B6 toxicity" you'll find lots of valuable info regarding this issue. Too much B6 can cause PN. |
||
Reply With Quote |
"Thanks for this!" says: | Chicosalt (12-30-2016) |
12-30-2016, 03:09 PM | #15 | ||
|
|||
Junior Member
|
Thanks, Protector. Will double check my intake for sure.
__________________
Ars longa; vita brevis. |
||
Reply With Quote |
12-30-2016, 09:52 PM | #16 | |||
|
||||
Member
|
Quote:
|
|||
Reply With Quote |
"Thanks for this!" says: | mrsD (12-31-2016) |
01-03-2017, 10:24 AM | #17 | ||
|
|||
Member
|
Quote:
|
||
Reply With Quote |
"Thanks for this!" says: | janieg (01-04-2017) |
01-04-2017, 08:25 AM | #18 | |||
|
||||
Member
|
That is pretty amazing how different we are. I'm trying to detect if lower salt intake makes me feel any better, but I can't say that I've noticed anything to date. I just know that overdoing it is really, really bad.
I've ordered an exome test and am going give the sodium channel genes a good going over. Quote:
|
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Are there any success stories | Peripheral Neuropathy | |||
Success Stories | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Success Stories? | Traumatic Brain Injury and Post Concussion Syndrome | |||
PT success stories? | Thoracic Outlet Syndrome |