I'm newly diagnosed with Idiopathic PN and have been doing lots of homework. I've begun a decent supplement regime per all the advice given on these forums, and have adopted a strict gluten free, low sugar diet. I'm beginning to consider dropping dairy and grains.
I'm looking for a little guidance now which I'm having trouble gleaning from anywhere:
1. Many of you talk about PN "flares." My symptoms are pretty constant, a bit worse at night when I'm thinking about them. I know what "flare" means, but curious: are these daily? last a day? week? month? I'm wondering how these work in with trying to evaluate getting better or worse.
That all leads to this question:
2. I've read, should gluten be an issue of PN, that one wouldn't know for up to a year or more, due to the time needed for nerves to heal. I understand this, am following this wonderful (healthy!) diet, but would love to hear some stories of success. I've read success with low sugar, and of many who are adopting different diets. What are your results?
Determined to contain this thing, starting early, and thanks you all for being out there.