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I have had a normal EMG and NCS but am starting to get blocked salivary glands and am struggling increasingly with a very dry mouth. But my neuro symptoms started well before the severe eye and mouth dryness. My punch biopsy a few years ago was negative - but my neurologist says this is not significant to her because of my symptoms, history of autoimmunity, oligloclonal bands and lip biopsy result. I was previously diagnosed and treated aggressively for RA five years ago but this was probably misdiagnosed (Sjogrens often mimics RA with bilateral joint pain) and my Sjogrens is now thought to be primary. My ANA is a clear positive with a nucleolar pattern. There is quite a strong possibility that I also have Scleroderma so I'm going to be tested in April for this, using a nailfold cappililiary test. My ENA panel is negative, meaning that I have seronegative autoimmunity. My sed rate is often very high. I am eight weeks into taking Cellcept but I don't yet feel much benefit - but no side effects at all either which is a first for me. Sorry I'm just on my way out but wanted to respond quickly. Hope this helps.
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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