Does anyone here have smooth, shiny (polished looking) soles with Raynaud's in their feet? This is after several years of small fibre neuropathy affecting all peripheries and my face? I'm slightly concerned that I may have peripheral vascular disease alongside my confirmed Sjogrens Syndrome.

I have this and it is secondary to my SFN. I believe PAD causes terrible leg pain when walking, doing activity, etc. Sounds more like manifestation of your neuropathy.

Thanks this is very reassuring. I do have terrible pain in my legs and arms during the night or while resting. It's throbbing and very deep in my calves, shins, knees and feet and is rather different to the SFN burning pain I suffered from for a few years. But the worst of this pain was in my soles so it makes some sense that this is now manifesting as shine.

I fret because my mum died prematurely from severe Atherosclerosis and I have the early clinical signs of this too - hence my question. I also have unexplained weakness in my arms and hands while resting. But I know I have sustained damage in my feet from the SFN so this is hopefully the culprit for the shininess and Raynauds attacks.

I'm also being checked for possibly Scleroderma and Vasculitus so these are possible culprits for my leg and arm pain too. My EMG and NCS were normal a few months ago so I was wondering if all this could relate to poor circulation caused by diseased arteries. I will see a podiatrist in a few weeks and he says he can tell if this is the case. My feet are fairly numb these days as a result of the SFN.

I'm sure there must be loads of overlap. I have shiny feet and sometimes hands. It's in the front of my feet. For me I'm sure that's the sfn damage to my skin making it thinner, more translucent and therefore shinier. Thin damaged skin (which sfn will cause) is going to look shiny in places if it's bad enough.
My feet feel like ice blocks to touch but burn sensation wise.
I have this weakness severely. I know this symptom you describe. Sometimes so bad it takes everything I have not to lie down all day. My legs are real bad. Autoimmune action is known to cause horrendous fatigue. If it feels like more than that to you - mine certainly is more than this - then it could be lots of other things. Nerve damage at a different level to sfn, myositis, or mitochondrial disorders are key possible culprits. It could also be neither. My research and discussions with neuro keep coming back to these 3 possibilities.

Thanks Joanna. My nerve conduction studies and EMG showed nothing at all so it's not Myositis for me. I think it must be SFN but I'm a bit baffled by the colour changes in feet which are clearly Raynauds related. I don't get this much in my hands - very occasionally my fingers turn bright white but it's not usually weather related. Toes and soles regularly turn luminous white and it is weather related. This is what makes me so confused about the pain - is it SFN or is it my dodgy circulation/ vascular/ mitochondrial ? It goes if keep moving but is horribly painful when I'm still.

I fret because both my parents had similar issues and both died suddenly of cardiac arrest at 73 years old. My mum was found by the coroner to have severe Atherosclerosis. She had unnamed circulation issues and similar weakness latterly along with vascular dementia. My dad had a rare type of heritary late onset diabetes. Not a great legacy!

Can SFN cause Raynauds do you know - or visa versa?

I have profound PN in my legs, and SFN in my upper body.

The soles of my feet became very shiny, my toes are purple because the nerve damage made blood flow to my toes restricted. Hot water will turn my toes completely white.

Sometimes one foot will be ice cold and the other rosy pink and warm. My toes will turn white. Usually both feet are icy cold and have to wear sock to bed.

Your neuropathy of whatever kind is causing the problems you have.

I don't have these problems in my hands, by the way.

But I do have SFN in my hands, and fingers and finger tips.

I take Gabapentin and it stops the pain, burning, itching and stabbing sensation in my scalp, face, lips, tongue, neck, arms hands and fingers.

Best wishes! Hugs, ElaineD

I have both shiny feet and soles, only after the SFN.

Hi there. Sorry never replied to this - must have missed it. I’ve only just found an app which sends me alerts - so hopeless with technology!

My Livedo on feet isn’t mild really - my feet go very dark purplish grey. I see a vascular doctor who says this is the small fibre neuropathy damage causing a vascular response. My thoughts are that I probably have some form of small vessel vasculitis occurring on and off because I have other symptoms and signs such as blood in pee and dark purple petechiae which come and go on my feet and legs intermittently. So I suspect the vascular dr is slightly wrong and the small vessel vasculitis is causing the small fibre neuropathy rather than the other way round. But I haven’t confirmed either with skin biopsy yet so we will see.


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My vascular dr would be the person to push with for PAD testing. But mine is bilateral. We’ve discussed the colour changes which he says are a benign response to temperature change due to nerve damage from SFN. He says this is permanent damage so there’s nothing that can be done. He thinks all my issues relate to SFN but he did mention small vessel Vasculitis too. I see him or rheum again a week today and have sent them images of the petechiae already.

My neurology appointment has been triaged by them and connective tissue clinic will want to wait to see what neuro says. But I feel strongly that this bouncing must stop and rheum must take the lead as I have a rheumatic disease not a neurological one. The Parkinson’s like symptoms are most unlikely to be PD but more likely to be Parkinsonism - movement disorder due to no one treating the SFN. That said I don’t want skin biopsies galore if they need to take one off the spots to check for IgA Vasculitis. X




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Ps and the colour changes and sensory issues often affect my hands too which they wouldn’t if it was PAD.


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