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Old 07-25-2007, 04:16 PM #1
amit amit is offline
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Default deformation in your feet

Hi friends

I notice lately to some changes in my feet - like hummer toes and high arch.
I would like to know if you are familiar with this phenomrna and does it connect to one type or more of neuropathy.
I have a meeting with my neurologist within 2 weeks, since then I would like to learn more about it.

Have a good day
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Old 07-25-2007, 08:38 PM #2
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Default Cmt

Genetic neuropathies are often part of the group CMT, Charcot-Marie-Tooth. One of the hallmarks of this is high arches and hammer toes. You might want to go to their website to read more. If you have sensory neuropathy, it's probably CMT type 2. The CMT Association will tell you more.
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Old 07-27-2007, 09:01 AM #3
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Default is there a forum of CMT?

I couldn't find one....
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Old 07-27-2007, 11:08 AM #4
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Default Hi Rina

Now i dopey most of the time,but today it's for medical reasons Ha.
Do you have any swelling in you ankles or legs. Is it hard to walk,
do trip or stubble or have any promblems lifting you feet,like getting
up and down a carve. Do you have pain in your feet or ankles,when
you lay down do the ankles fall to one side? Well,when you post
i'll try to keep a eye out. Hope you can read the mistakes. Just got
home from a day and night in the hospital my home away from home.
Sue honest i mean well
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Old 07-27-2007, 03:43 PM #5
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Default

CMT forums are usually very slow. I would go to the CMT Association site as Liza Jane suggested. There are other site too, which you can find using Google or another search engine.

I am very familiar with it, because lots of people on one side of my family have it. It can vary a lot, from very slight disability to wheelchairs (not common). High arches and hammer toes makes it a very good possibility, and it would be a good idea for you to read at the CMT Association site before seeing the doc, as very often docs do not concentrate on neuropathies.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 07-27-2007, 09:58 PM #6
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Default

Liza Jane, I have a question. I was diagnosed with idiopathic, small fiber, painful sensory neuropathy 8 years ago. I have not developed any weakness, but without medication my pain approaches a 10. Why do you say that if it is sensory it must be CMT? My neurologist never mentioned it to me. I thought CMT was alway hereditary? Is this a new thought on sensory neuropathy? I would appreciate any information you could give me. Thanks.
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Old 07-28-2007, 06:49 AM #7
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Default It's not that all sensory or small-fiber neuropathies are hereditary--

--or involve genetic mutations--there are small fiber neuropathies linked to gluten sensitiivty, diabetes, and the like--and by definition, small-fiber neuropathies are sensory and/or autonomic, as "small" in neurological terms refer to the fibers that control the sensations of pain, temperature, and many autonomic functions.

What I think was meant was that sensory symptoms that accompany that kind of foot arching/hammer toe situation is very likely to be Charcot Marie Tooth syndrome or a related genetic neuropathy--it's a fairly classic symptom presentation.

There are a few other neuropathies that might result in somewhat different types of foot symptoms.

These sites may help to show the different patterns:

http://www.neuro.wustl.edu/neuromuscular/time/hsn.htm

http://www.neuro.wustl.edu/neuromusc...rge+small.html
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Old 07-29-2007, 02:08 PM #8
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Default

thank you, glenntaj, for clarifying. Yes, that is what I meant.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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