Junior Member
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Join Date: Dec 2014
Location: New Hampshire
Posts: 64
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Junior Member
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
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SCN9a results negative
Hi Everyone.....just wanted to give you an update on my genetic test for SCN9a. It was negative. My neurologist is now testing for SCN10a and SCN11a. The SCN9a blood draw was in December and I just got the results so it takes awhile but I will let you know. I suspect it may be SCN10a because that is associated with heart rhythm problems. My father had atrial fibrillation and a relentless itch which was never diagnosed as neuropathy. The dermatologists gave him all kinds of creams that didn't help but he was never referred to a neurologist. Mine was subacute onset during the months of March - August 2014. Pain stabilized and hasn't changed since onset. Trying to reduce gabapentin due to side effects. Went from 2700mg daily to 2400mg for 3 weeks. Yesterday started 2100mg but I don't know if I am going to last on 2100mg. Pain is coming back. Maybe I did it too quick? Added Benfotiamine which may have helped with the 2700mg to 2400mg decrease. That's it for now. I hope everyone is finding peace in their own way.
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