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Old 07-26-2007, 06:44 AM #1
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default Rsd?

I have pn but my major like most know is in my left inner ankle foot but have pn actually in both legs. Anyhow all the current docs say I need to treat it like RSD though I don't have some of those symptoms. That is why they want aggressive rehab and why they want the epidural catheter for me so I can work through the pain. I have been doing more every day without even on some days a 15 minute walk but really pushing like errands. Anyhow anyone with RSD here and what you do to help? The doc said that he wants me to be able to run again which I will never do again but would love the option so why the rehab is important. He kept saying you need to exercise on it and it feels worse at the time but better in the long run. He said since I fear damage that its not just feeling it will. Have people found they have made huge progress with more activity?I'm looking into a lower level pt program then was at CC to see if I can do it witout the catheter. Also I have the on and off dizzy and shot in the neck feeling. I get super shaky and no tests or meds seem to have the reason of why. It comes and goes like a few days I will have it then a week not and I even baught a carbon monoxide detector thinking that may be why. The alarm never rang though. I worry about having a seizure almost. Is this a symptom of rsd too or pn? All the docs just look at me like we don't know why and my sugar and bloodwork has been tested so many times. Of course at the program it never happened. Also my leg seems to get very painful in the cold more then when warm or even a breeze kills it. Just any ideas and I found a rsd support group so I'm hoping to join since similar right now to my pn. Thanks
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