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Old 03-28-2017, 02:35 PM #11
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KATO KATO is offline
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Hello Debi. I'm on Levothyroxine for low thyroid, Clonazepam, Flexiril, Percocet, Amitriptyline, Fenofibrate and Cymbalta. I take Imitrex as needed. I was taking Hydroxychloroquine for Lupus but I stopped it because we thought it may be causing what now know is the SFN. Thank you for the reply. I guess I'm just in a bad place now. I'm still waiting on my blood work and do not have a neuro appointment scheduled yet. I guess he is waiting on blood work too. Thanks again. Karen
I have contacted my neurologist 3 times but I have not heard back from him. I guess he's waiting on the blood work as well. I have explained I have new symptoms and things going on that I need to see the doctor about. But still no reply. Thank you for your time Karen
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Old 03-28-2017, 04:44 PM #12
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Dear Karen.... your drug list may be problematic for you.
There are 3 drugs you listed that can add up to serotonin syndrome. I have bolded them for you. Here is a link to a drug checker, that explains the interactions:
Drug Interaction Report - Drugs.com
I only checked two drugs.... so feel free to check all of yours for interactions, there. If you obtain all your prescriptions at one pharmacy, these interactions are explained on your drug print outs. Ask your pharmacist for more details.

Quote:
Interactions between your selected drugs
Major
cyclobenzaprine duloxetine

Applies to: Flexeril (cyclobenzaprine), Cymbalta (duloxetine)

Using cyclobenzaprine together with DULoxetine can increase the risk of a rare but serious condition called the serotonin syndrome, which may include symptoms such as confusion, hallucination, seizure, extreme changes in blood pressure, increased heart rate, fever, excessive sweating, shivering or shaking, blurred vision, muscle spasm or stiffness, tremor, incoordination, stomach cramp, nausea, vomiting, and diarrhea. Severe cases may result in coma and even death. You should seek immediate medical attention if you experience these symptoms while taking the medications. Talk to your doctor if you have any questions or concerns. Your doctor may already be aware of the risks, but has determined that this is the best course of treatment for you and has taken appropriate precautions and is monitoring you closely for any potential complications. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

Switch to professional interaction data
You should consult your doctor who gave these drugs to you.
Neurologists typically only deal with nerves. You may be having a drug reaction, and so you should consult your other doctors, for lupus or other inflammatory problems.


Quote:
Originally Posted by KATO View Post
Hello Debi. I'm on Levothyroxine for low thyroid, Clonazepam, Flexiril, Percocet, Amitriptyline, Fenofibrate and Cymbalta. I take Imitrex as needed. I was taking Hydroxychloroquine for Lupus but I stopped it because we thought it may be causing what now know is the SFN. Thank you for the reply. I guess I'm just in a bad place now. I'm still waiting on my blood work and do not have a neuro appointment scheduled yet. I guess he is waiting on blood work too. Thanks again. Karen
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bluesfan (03-29-2017), KATO (03-29-2017)
Old 03-29-2017, 03:45 PM #13
JoannaP79 JoannaP79 is offline
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Hello all. I'm having very difficult time as of late. For approximately the last 3 weeks I've had excruciating pain in my wrist knees my back my behind my eyes. I've had double vision that sometimes will last for hours and sometimes just so I don't know 10-15 minutes. I can't stand up out of the chair without pulling myself up or pushing myself up with my arms and my arms are getting weaker as well. I still haven't heard from the blood test for after the punch biopsy and diagnosis of the sfn. To me this type of pain is unusual. I've had back problems since my mid-twenties and I'm 50 so over half my life I know that pain but I don't know this pain and I just wondered if someone could help me understand what is going on in my body thank you ahead of time. God bless you k.
Hi KATO, we know what you are going through. I have sfn all over and autonomic issues affecting digestion, breathing patterns and heart rate. Also have weakness in my limbs, it can feel paralysing at times. I too have no clear diagnosis for exactly why. Again, like Healthgirl, I'm being investigated for Ehlers Danlos Syndrome (EDS), a defect in the production of types of collagen in your body. I'm not entirely sure about this and again don't want to diagnose you. I have arthritic issues and have for many years before the onset of this neuro stuff. So that sounds like you with the wrist and back and knee pain. A load of autoimmune arthritic conditions can be connected to neuro damage I understand so again I can't mislead you. It might just be worth looking into as part of any research you may do.
I get double vision, usually quite bad during the evening. I was told that autonomic issues can cause this.
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