Hello all. I'm having very difficult time as of late. For approximately the last 3 weeks I've had excruciating pain in my wrist knees my back my behind my eyes. I've had double vision that sometimes will last for hours and sometimes just so I don't know 10-15 minutes. I can't stand up out of the chair without pulling myself up or pushing myself up with my arms and my arms are getting weaker as well. I still haven't heard from the blood test for after the punch biopsy and diagnosis of the sfn. To me this type of pain is unusual. I've had back problems since my mid-twenties and I'm 50 so over half my life I know that pain but I don't know this pain and I just wondered if someone could help me understand what is going on in my body thank you ahead of time. God bless you k.

Forgive me for taking up all the space. But I forgot to mention a few things. I've also been having digestive issues every time I eat or drink anything immediately afterwards comes up in my throat. I know that sounds gross but that's what's happening. It's as if also that my guts are asleep and nothing wants to move the way they should. I take Miralax everyday and I've been having to take stimulant laxatives morning and night just to be able to go to the bathroom. These electrical shocks that I'm having seem to be getting worse period it could be due to the warmer weather I'm not sure. I do know that heat such as a nice warm shower will hurt me. So I've taken cold showers for over 2 years. My nerves are shot. I just want to cry all the time I don't know what's going on. Any help would be greatly appreciated thank you again. Karen

It's me again sorry. I'm also having to search for my words to put a sentence together. I forget how to do jobs or tasks that I've known how to do for the majority of my life. This is just crazy. I have Raynaud's as well but I've had that since my elater twenties and my hands have been numb pretty much all the time for the last two weeks. My legs between my knees and my ankles I can't feel the skin he can stick me with a needle and I can't feel it. I also have osteoarthritis migraine headaches scoliosis in my spine. I think that might cover it at least that's enough for now. Thanks again Karen

Hi Karen,
Have you had a full autoimmune work up? It sounds like you are having symptoms of peripheral neuropathy.

I am currently waiting on blood test results. I did have a punch biopsy. And was diagnosed with small fiber neuropathy as well as autonomic neuropathy. This so many strange things have just been going on these last few weeks that are new to me and I don't understand. He's tested me for pretty much every autoimmune disease there is from what I can understand them the test but I've researched. I hope to get my blood results back very soon so I'll have an answer. My rheumatologist diagnosed me with lupus and fibromyalgia period but now he is not sure where weather I have fibromyalgia or lupus. So anybody's guess I guess that's what's going on. Thank you for the reply.

ok, I was going to say it sounds exactly like what I have, but don't like to put my diagnosis on anyone... but there it is. I have dysautonomia and sfn, and have everyone of those symptoms. They are extremely painful and scary. My only advice is to not panic, try to understand that it is from sick nerves. Being upset, nervous, living in fear... is so terrible for the poor nerves. It makes everything worse. Until they figure out how to put it in remission, or the autoimmune attack calms down we have no options but to manage the symptoms. I know how upsetting it is. One day at a time. Hopefully they will be able to settle it down if they get conclusive blood work and will treat the autoimmune part. Otherwise they can only offer meds to manage the symptoms.

What medications are you taking for this ?
(sorry if you already stated this on another post)

I totally understand the electrical shocks....those and the burning are the worst for me plus deep aching to the bone in my arms and legs.

Between my chemo and gabapentin I can't think straight either.....hard to find the word or words I'm looking for. Paying my bills every month has really become a chore and takes me a couple hours each month to do.

I find myself putting off everything until the last minute....I know there is a word for that but I can't think of it !

You have so many conditions that they may be overlapping each other. All this is so hard to understand isn't it ?
I'm dealing with some sinus issues and it seems to make my SFN worse. Seems like they both flare at the same time putting me in bed moaning and groaning. (I use moaning and groaning a lot in my posts cause that's exactly what it is...lol)

I usually go to sleep about 9 or 9:30 (earlier if my pain is off the charts) and usually stay in bed till noon the next day...sleep or anything to get away from the pain.

But as I just told Joanna.....I wake up and the sun is shining and that makes me happy. My dogs kiss me good morning and that makes me happy....you can see where I'm going with this

Wish I could offer some suggestions but I don't have enough knowledge to help you.

But I'm (we're) here when you need us.

Debi from Georgia

Thank you. I know I am in a panic. I've delta with pain most of my life but this is different. Again, thank you. God bless you.

Anything that pops up quickly and is severe should be reported to your doctor. You might need a course of steroids or another type of immune modifying treatment.

If you take blood pressure pills, and they are ACE inhibitors, that might be a signal to have them changed. They can cause a drug induced lupus. ( I had that reaction a few years ago).

Hello Debi. I'm on Levothyroxine for low thyroid, Clonazepam, Flexiril, Percocet, Amitriptyline, Fenofibrate and Cymbalta. I take Imitrex as needed. I was taking Hydroxychloroquine for Lupus but I stopped it because we thought it may be causing what now know is the SFN. Thank you for the reply. I guess I'm just in a bad place now. I'm still waiting on my blood work and do not have a neuro appointment scheduled yet. I guess he is waiting on blood work too. Thanks again. Karen