Hello,
So EDS is a collagen disorder. The connective tissue is missing a link somewhere so its kind of incomplete. The joints are unstable which causes terrible strain and over work of the muscles and weak ligaments and those are both compromised as well. The joints can be hyper flexible, skin is soft. Dysautonomia is common with it (temp regulation, digestion, absorption, respiration, heart, basically everything your body is supposed to do automatically is haywire and random when it should work in sync with out a thought). I knew we had some sort of a genetic connective tissue disorder for a while, but I was still in denial until all of the evidence put together from this journey doesn't lie. I wish it could turn out to be a lie. Things could always be worse though and I'm thankful for each day. My children do well in school and have nice lives. We are everything we need and will stay positive for improvement from the neuropathy for me and for it not to progress in the kids.