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As everyone here knows, I'm pretty much left on my own with managing my condition.
Along with my full body neuropathy came asthma. It occurs almost religiously in the mornings about 1/2 after I get up and try to start moving, or when I am in humid warm or cold air, or try to exercise. To deal with this I have ventolyn and pulmicort. The propellant in symbicort gives me a hard time, so that is why I take these pumps separately. My symptoms might be a combination of vasomotor neurological problems. Seems like its coming from my nervous system vs a regular asthma thing. I'm pretty sure of it. Also, due to my autonomic problems, I have gastro issues and wonder if it is some kind of a silent reflux. Everything seems to go haywire, and there are so many issues. I try to get my kids ready for school and my breathing is so winded like I ran a mile when I'm trying to pack lunch. IT is ridiculous. The ventolyn helps to open me up and let me cough up plegm, but then it worsens the rhinitis for a while. I don't know if the pulmicort is even doing anything but at this point, with this problem every day now, I've accepted that it is some kind of strange asthma so I do two puffs of it. It definitely doesn't make me worse, and i have no side effects from the low dose. So I'm looking for any advice or opinions. Also, I'm supposing that the ventolyn works as a vasoconstrictor to work as a bronchodilator. I realize that my dysautonomia leads to terrible vasodilation all over my body which causes blood pooling, weakness, dizziness, etc.... so thats probably why I can't breath correctly. I wonder.... if a vasoconstrictor by mouth might actually solve so many problems all around for me. Isn't that at least interesting? I am researching and there are tons of vasoconstrictors. I tired midodrine and it wasn't helping, but there are other options. Who would I even talk to about it? Cardiology? Allergist? Seems like one little pill could do everything I need to get through the day. Help breathing, help raise bp, tighten veins, shrink swollen vessels. What do y'all think? |
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