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Old 05-03-2017, 07:35 AM #11
ellsac ellsac is offline
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ellsac ellsac is offline
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Join Date: Dec 2014
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Originally Posted by bluesfan View Post
Hi ellsac

Nice to see you back - I'd been wondering how you were getting on. Have you found any effective (or semi-effective) pain relief meds that you're able to take that don't interact with the Hydrocortisone you take for Addisons?

I've been trying to find something for severe lumbar spine pain (bulging discs, twisted spinal cord cover? and arthritis). Have trialed Low Dose Naltrexone (it reduced the efficacy of Hydrocortisone so I had to stop) and more recently I tried Gabapentin but the side effects at only 100mg dose meant I couldn't continue.
Hi there! I don't take anything for pain. Whatever pain I get I deal with, but my sfn symptoms are mostly numbness and decreased sense of touch now. I can't feel pain when being slapped even haha. I feel the pressure and sensation, but it doesn't hurt. It's patchy, some areas are more sensitive than others. I'm 4 months pregnant, and I did have a bit of a pain flare not long in...not shocking to me because my sfn started after a bad reproductive hormone issue, and I would get flares during certain cycle times.
When my pain was bad, I tried gabapentin but didn't like the side effects so I stopped. The only thing I used after that was klonopin. It doesn't help the pain really, but it would help me be less stressed, sleep, and better able to handle it mentally.
I had surgery a year so for a severely herniated disk in my neck. I was losing strength in my arm, and the disk was pressing into my spinal cord. Had the herniation removed, and a big chunk of arthritic vertabrae.
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Old 05-03-2017, 12:46 PM #12
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madisongrrl madisongrrl is offline
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Originally Posted by Zatochi View Post
.....and I suppose you might have Atypical but from I've read most people with Atypical have burning sensations in their gums and pain like a severe toothache

It's not always a burning sensation in the gums. It can feel like a toothache or feel like an object lodged in the jaw.

It seems like the people who have full body SFN, tend to have atypical face pain vs TN type 1. There are small fiber nerves in the ophthalmic branch of the TN nerve.
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  • Gabapentin, Nortriptyline, & Low Dose Naltrexone
  • Methylcobalamin/Methylfolate, & Vitamin D3/K2
  • Phosphatidyl Choline, Phosphatidyl Serine & Probiotics
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