Hi pinkynose.
I am aware of the fact that you mentioned. Unfortunately , there are not any tests that can prove that what happens to me is induced by fluoroquinolone drugs. So it is just one of the many options for me. Moreover, there are not any accepted treatments existing for this condition. A little bit off topic: it really amazed me that the medicine prescribed by the doctors every day can be so dangerous for one's health. When I checked my medical history recently I found out that I was prescribed fluoroquinolone antibiotics 2 times throughout year 2015 and one more time in February 2016. Every time for quite the regular infections, nothing really dangerous for the health. People should be informed better about the big risks involved with this antibiotic's group. |
Big Pharma is very powerful in the US.
Bitter Pills: Inside the Hazardous World of Legal Drugs: Stephen Fried: 978553378528: Amazon.com: Books I bought this book when it came out, as I was very interested in the topic and watched this 3rd tier drug leap into first tier just because sales reps encouraged its use. Back in the late 1990's it was mostly used for prostate and urinary infections. But this family of drugs got approved for community acquired pneumonias and that became the golden goose. The author's wife developed a seizure disorder from Floxin. And even Oprah's show had a piece on these drugs when one of her producers had serious brain effects from them. The brain effects were known right from the get go...as there were warnings in the initial drug insert information to not give high doses to elderly patients. The PN effects became more visible as time passed. The only people I think who were oblivious were the doctors. They were heavily gifted by sales reps to prescribe lots of fluoroquinolones, and they used their gifts mightily. Even today as you experienced there are doctors out there still prescribing these drugs willy nilly. The recommendation is that they should be last resort treatments. But the word is getting out slowly. Last summer my hubby had a cellulitis from a spider bite, and they did not give him a fluoroquinolone in the ER. The late Dr. Jay Cohen MD suggested online on his website that magnesium supplements may help. You can Google him and see if his site is still available today. |
In most cases with fluoroquinolones people tell about almost immediate reactions and the symptoms are usually much more diverse than mine. My problems started more than 2 months after I was treated with Levofloxacine. Still, I don't rule out that possibility for myself.
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Also people vary in their reactions to these drugs. Some never have a problem and others are severely impacted. |
I paid attention that my problems have a "flare up" pattern. Unfortunately, every flare up seems to be worse than the one before it. Can this kind of pattern hint somehow on the etiology of the problem? What causes the "disease" 's symptoms to come and then subside for every 7-10 days?
I read about it somewhere: "*a FLARE can be related to natural (but poorly understood) fluctuations in the immunological processes that drive inflammation." So can my problem be related to the immunological processes in the body? P.S. I know that what I write and ask is very simplicistic or even stupid but as I told before my medical knowledge is at the lowest level possible. |
Notsohappy, I do not think that you are stupid.
Often inflammatory responses have an immune system involvement. The immune system is very complicated; many different kinds of cells, many different proteins, all interacting with each other in poorly-understood complex ways which can be affected by things like prescription drugs. A specific example of this is a sadly now-deceased friend of mine who lived with Crohn's Disease for many years. Crohn's Disease is a primarily inflammatory condition with some immune system involvement. She quite often had flares which neither she nor her very good health care team could explain. |
Sometimes keeping a journal of what you eat,what you do, exercise,how you feel, will reveal a trigger to flares.
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That is a good beginning.
I along with many others here, find that barometric lows that come with storms are very flaring of pain. So record your daily weather in your journal. I also flare severely with processed (including restaurant) food because MSG is common in many foods in the US. Some people here have stated that sugar also flares them. Also some people have posted here and on the addiction forum that alcohol can flare them. |
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