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madmax80 05-09-2017 11:02 AM

Thanks mrsD. I am given metronidazole 750mg thrice daily for 10 days. thing is about blastocystis is that if no other visible cause is causing the diarrhea, then it should be treated. There are times I see that everything I ate just went out, almost as is.

Any advice on the cold and sweaty palms and feet? especially when exposed to even slight colder temperatures? and this is Israel... it's very warm outside, but A/C in the office..
When my palms are at normal temprature it feels so much better.
I used to like the cold weather so much.. hated the hot temperatures as I'm sweating like hell. Now, I dont mind sweating at all..

I'm also feeling my mouth is very dry for the last couple of days, might be the tension though.

Thanks for all the support.

mrsD 05-09-2017 11:51 AM

That is a very high dose. Metronidazole has been a PN trigger here for some posters.

Chronic diarrhea may respond to Metamucil (Psyllium) daily. This acts as a sponge to sop up toxins that may be produced in gut from bad bacteria, etc. I had a GI specialist suggest this for me
many years ago.

Use our search function on page 1 here to find the older posts from posters who are no longer visiting here.
"metronidazole" or "Flagyl" keywords should bring up some older discussions.

madmax80 05-22-2017 02:43 AM

Minor updates
 
Vitamin B6 status 23 on the scale of 9-27. still waiting for vitamin b1 and e.
exome sequencing is WIP.
Done with antibiotics
Diarrhea has nausea stopped.
I saw a new neurologist, his conclusion was that my neuropathy is light, but the anxiety levels are very high. The meeting with him was a relief. He did mention that the familial dysautonomia mutation sounds interesting.
I have been wearing sandals the last two weeks and that is helping me the burning feet, I do still have pain episodes, but less.
I stopped the supplements as I thought it might have added to the diarrhea and nausea. I might try to take the ALA again.
I saw a skin doctor who is also a genetic specialist. They will review the skin biopsy taken and asked they look for a ATP2A2 mutation in the exome sequencing. He wants to rule out darier disease.

So, more to come. I'm feeling good less stressed.

madmax80 05-28-2017 05:41 AM

Vitamin E and B1 are in range also.

madmax80 06-26-2017 07:53 AM

I'm still waiting for the exome sequencing results.
Meanwhile, I have started to try some supplements and wanted to hear your advice.
Started ALA 600mg for a week, and for the last two days doubled to 1200mg.
250mg grape seed extract
100mg phosphatidylserine - trying.. for the ikbkap muation i carry.

I'm vegetarian. What about omega 3 supplements and SFN? Can you think of other supplements I should try? Should I try to increase the dosages?
My symptoms continue - burning feet at times, pain in the hands fingertips and cold hands. I'm also feeling some vibrations above the knee and below the hip of my right leg. constant tinitus on my left ear, and sometimes on my right.

mrsD 06-26-2017 09:14 AM

I would try taurine 1000mg a day for the tinnitus.
Taurine is in most meat foods, and you don't eat animal sources.
Benefits of Taurine | Life Extension

The omega-3s are very important. There are vegan versions with EPA and DHA if you won't use fishoil/krill oil.

Methylcobalamin is a must for vegans. There are many YouTubes that discuss this.

Flax oil is metabolized to EPA and DHA, but not in large amounts like in women. So if you use flax oil, you may not have enough DHA and EPA for healing (males about 4% convert, and females 20-25% convert because they furnish fetuses which use these Omegas for nerve/brain growth.)

madmax80 06-26-2017 09:21 AM

Thanks mrsD.
I just briefly read about taurine and will order it. I do take Methylcobalamin 1000mg twice a week.
Which omega 3 would you recommend? any specific brand?
What about the Grape seed extract? I was hoping it might help with my cold hands, what's the dosage i can go there?

Thanks again!

mrsD 06-26-2017 09:32 AM

Just Google vegan DHA and EPA. The EPA sometimes thins the blood and improves circulation.

I use Krill oil myself now, but I used fish oil 3 times a day in the past. I take one 500mg Krill oil daily now.

There is much less EPA and DHA in these vegan types than real fish oil products:

Amazon.com: Deva Nutrition Deva Vegan DHA-EPA Delayed Release 9 Count: Health & Personal Care

So these are more pricey than fish oil. Looks like 1/2 of the content in the vegan product. You should start with 2 a day of the vegan one.


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