advertisement
Reply
 
Thread Tools Display Modes
Old 05-09-2017, 11:02 AM #21
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
Default

Thanks mrsD. I am given metronidazole 750mg thrice daily for 10 days. thing is about blastocystis is that if no other visible cause is causing the diarrhea, then it should be treated. There are times I see that everything I ate just went out, almost as is.

Any advice on the cold and sweaty palms and feet? especially when exposed to even slight colder temperatures? and this is Israel... it's very warm outside, but A/C in the office..
When my palms are at normal temprature it feels so much better.
I used to like the cold weather so much.. hated the hot temperatures as I'm sweating like hell. Now, I dont mind sweating at all..

I'm also feeling my mouth is very dry for the last couple of days, might be the tension though.

Thanks for all the support.
madmax80 is offline   Reply With QuoteReply With Quote

advertisement
Old 05-09-2017, 11:51 AM #22
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

That is a very high dose. Metronidazole has been a PN trigger here for some posters.

Chronic diarrhea may respond to Metamucil (Psyllium) daily. This acts as a sponge to sop up toxins that may be produced in gut from bad bacteria, etc. I had a GI specialist suggest this for me
many years ago.

Use our search function on page 1 here to find the older posts from posters who are no longer visiting here.
"metronidazole" or "Flagyl" keywords should bring up some older discussions.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
madisongrrl (05-09-2017)
Old 05-22-2017, 02:43 AM #23
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
Default Minor updates

Vitamin B6 status 23 on the scale of 9-27. still waiting for vitamin b1 and e.
exome sequencing is WIP.
Done with antibiotics
Diarrhea has nausea stopped.
I saw a new neurologist, his conclusion was that my neuropathy is light, but the anxiety levels are very high. The meeting with him was a relief. He did mention that the familial dysautonomia mutation sounds interesting.
I have been wearing sandals the last two weeks and that is helping me the burning feet, I do still have pain episodes, but less.
I stopped the supplements as I thought it might have added to the diarrhea and nausea. I might try to take the ALA again.
I saw a skin doctor who is also a genetic specialist. They will review the skin biopsy taken and asked they look for a ATP2A2 mutation in the exome sequencing. He wants to rule out darier disease.

So, more to come. I'm feeling good less stressed.
madmax80 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
echoes long ago (05-22-2017), hopeful (05-22-2017), mrsD (05-22-2017), onlyhuman (06-26-2017)
Old 05-28-2017, 05:41 AM #24
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
Default

Vitamin E and B1 are in range also.
madmax80 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
onlyhuman (06-26-2017)
Old 06-26-2017, 07:53 AM #25
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
Default

I'm still waiting for the exome sequencing results.
Meanwhile, I have started to try some supplements and wanted to hear your advice.
Started ALA 600mg for a week, and for the last two days doubled to 1200mg.
250mg grape seed extract
100mg phosphatidylserine - trying.. for the ikbkap muation i carry.

I'm vegetarian. What about omega 3 supplements and SFN? Can you think of other supplements I should try? Should I try to increase the dosages?
My symptoms continue - burning feet at times, pain in the hands fingertips and cold hands. I'm also feeling some vibrations above the knee and below the hip of my right leg. constant tinitus on my left ear, and sometimes on my right.
madmax80 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
onlyhuman (06-26-2017)
Old 06-26-2017, 09:14 AM #26
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I would try taurine 1000mg a day for the tinnitus.
Taurine is in most meat foods, and you don't eat animal sources.
Benefits of Taurine | Life Extension

The omega-3s are very important. There are vegan versions with EPA and DHA if you won't use fishoil/krill oil.

Methylcobalamin is a must for vegans. There are many YouTubes that discuss this.

Flax oil is metabolized to EPA and DHA, but not in large amounts like in women. So if you use flax oil, you may not have enough DHA and EPA for healing (males about 4% convert, and females 20-25% convert because they furnish fetuses which use these Omegas for nerve/brain growth.)
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
onlyhuman (06-26-2017)
Old 06-26-2017, 09:21 AM #27
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
madmax80 madmax80 is offline
Junior Member
 
Join Date: Apr 2017
Posts: 14
5 yr Member
Default

Thanks mrsD.
I just briefly read about taurine and will order it. I do take Methylcobalamin 1000mg twice a week.
Which omega 3 would you recommend? any specific brand?
What about the Grape seed extract? I was hoping it might help with my cold hands, what's the dosage i can go there?

Thanks again!
madmax80 is offline   Reply With QuoteReply With Quote
Old 06-26-2017, 09:32 AM #28
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Just Google vegan DHA and EPA. The EPA sometimes thins the blood and improves circulation.

I use Krill oil myself now, but I used fish oil 3 times a day in the past. I take one 500mg Krill oil daily now.

There is much less EPA and DHA in these vegan types than real fish oil products:

Amazon.com: Deva Nutrition Deva Vegan DHA-EPA Delayed Release 9 Count: Health & Personal Care

So these are more pricey than fish oil. Looks like 1/2 of the content in the vegan product. You should start with 2 a day of the vegan one.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Reply

Tags
normal, screen, started, tests, time


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly Diagnosed - Small Fiber/Large Fiber Neuropathy! Please Help! JoshuaY46012 Peripheral Neuropathy 17 11-12-2019 03:55 AM
Post-Flu Vaccine Neuropathy (Possible Small Fiber Neuropathy) tarheel15 Peripheral Neuropathy 30 10-04-2019 05:44 PM
Small Fiber Neuropathy Pain and Autonomic Neuropathy. Frustrated! Peripheral Neuropathy 7 10-07-2014 01:15 PM
Small Fiber, Large Fiber & Autonomic Neuropathy Loves Pappilions Peripheral Neuropathy 9 06-01-2011 09:02 AM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM


All times are GMT -5. The time now is 12:33 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.