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Old 05-19-2017, 11:43 AM   #11
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Hi en bloc,

I am based in London in the UK - apparently there is one rehumy who has a special interest in Sjogrens, so I have my appointment with here.

I have a collection of notes dating from when this first began in 2011, I will organise and take along with me. I hope as I am paying for this privately that she will allow me to have the lip biopsy regardless of the lack of evidence in any blood results.

Another random question, which I seem to have flagged as a pattern, do hormones play a part in this illness? I without doubt notice a flare around the time of my period, is that common?


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Old 05-19-2017, 09:32 PM   #12
en bloc
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Location: Shenandoah Mountains, VA
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My Mood: Ganglionopathy/Sjogrens

Many people with Sjogren's find this to be true. But I don't know if it has been confirmed medically, or what the mechanism of action would be causing the flare.
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Old Today, 01:46 PM   #13
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Kristy I haven't had a chance to read all that you posted but did either of the neurologist do a skin biopsy for small fiber neuropathy. This will not show on an EMG. I had a lot of your symptoms when I first was diagnosed with SFN. I did not get depression right away though. I think that came later after being in so much pain.
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depression, neurologist, onset, settled, symptoms

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