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Old 05-31-2017, 08:50 PM #1
gdg111 gdg111 is offline
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Default Peripheral Neuropathy - Scared

Hi: 45/year old male here. I went to my primary care doctor with numbness, burning and severe stiffness feeling in both feet. They tested my blood and everything was normal. That doctor referred me to a podiatrist - the podiatrist told me that he thought I had peripheral neuropathy and now wants me to see a neurologist. I am afraid that it is going to spread throughout my body. I acquired severe tinnitus about 8 months ago and only with the help of Jesus am I starting to cope with my tinnitus. I am not a diabetic. However, I need to lose some weight in-which I am achieving now to try and lessen the load on my feet. Any help advise would be so helpful and greatly appreciated. God Bless - douglas
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Old 06-01-2017, 06:50 PM #2
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Hi Douglas,

I'm sure if you've found this website you must know by now there are over 100 causes of peripheral neuropathy. It requires quite a few tests to try and find a cause, and many, including myself remain idiopathic after years of tests.

But one thing I have discovered is the mind/body is amazing in it's ability to adapt to change. While my symptoms have not improved at all in the last 2 years, I feel much better than I did when first diagnosed. Even if you knew me fairly well, you would have no clue I have a medical issue.

I think the suggestion to see a neurologist makes sense, and begin the process of ruling out the many potential causes (if you even have it).
It will take time, so try to be patient. Getting stressed out often exacerbates the symptoms so try to have a positive mental attitude. It's not easy, but it's the best advice I could have received when this journey began.

Best of luck.
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Old 06-01-2017, 07:50 PM #3
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Quote:
Originally Posted by Protector View Post
Hi Douglas,

I'm sure if you've found this website you must know by now there are over 100 causes of peripheral neuropathy. It requires quite a few tests to try and find a cause, and many, including myself remain idiopathic after years of tests.

But one thing I have discovered is the mind/body is amazing in it's ability to adapt to change. While my symptoms have not improved at all in the last 2 years, I feel much better than I did when first diagnosed. Even if you knew me fairly well, you would have no clue I have a medical issue.

I think the suggestion to see a neurologist makes sense, and begin the process of ruling out the many potential causes (if you even have it).
It will take time, so try to be patient. Getting stressed out often exacerbates the symptoms so try to have a positive mental attitude. It's not easy, but it's the best advice I could have received when this journey began.

Best of luck.
Thank you so much for responding to me. What do the neurologist do to get a definitive diagnosis of neuropothy?
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Old 06-02-2017, 03:03 AM #4
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Smile Good Morning Douglas

I totally agree with the excellent advice Protector gave you. I've had idiopathic neuropathy for well over 20 years, and I've learned to live with it. I thank the Lord every day that the cause of it is not diabetes.

The neurologist will probably want to do an EMG test. It may help you to find the cause, and yet it may not. There is no known cure, and because it's idiopathic there is no way of knowing what is causing it. One doctor told me it was called idiopathic because the idiot doctors don't know what is causing it. He said that to put a smile on my face.

You have come to the right place. Keep coming here and you will learn so much from how vitamins, minerals, and nutrition may help to alleviate symptoms. It's a great comfort to have the support of others who are willing to share and support their own experiences with this mysterious #%&#*%# affliction. Stay well and God Bless
__________________
It ain't what it used to be...
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It ain't what it's gonna' b
e...
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It is what it is!...
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Old 06-02-2017, 08:29 AM #5
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Originally Posted by gdg111 View Post
Thank you so much for responding to me. What do the neurologist do to get a definitive diagnosis of neuropothy?
There are many visual and mechanical standard neurological tests they will perform during an initial checkup. After that they usually start with a battery of blood tests looking for any abnormalities that can damage the nerves.

They also, depending on your symptoms, may recommend some MRI's searching for possible compression issues. There are countless other tests if the easy ones come back negative, but the doctor will decide, depending on your symptoms, if they are worth pursuing.

If all your results over time are normal, the definitive test for small fiber neuropathy is the skin biopsy. A small plug of skin, usually from the thigh and ankle, is sent to a lab to count nerve fiber density.

Keep in mind, this process usually takes many months or more. Believe it or not, the symptoms your experiencing sometimes go away by themselves. I did not have a skin biopsy until more than a year after symptoms started. And sometimes people with symptoms show normal nerve density.

So Rosie33 also gave you excellent advice. This forum is an wealth of valuable information. The search feature rarely fails to provide answers to many questions you will encounter. So search away, if you don't find your answer, just ask.
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Old 06-02-2017, 03:41 PM #6
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Grape Seed Extract: How Healthful Is It? - Medical News Today

Grape seed extract let a friend throw away gabapentin a few yrs ago. She dealt with what the doctors told her was ideopathic neuropathy, but later her daughter found it was from statin drugs, years of the drugs. That's a whole other topic.

I've been taking grape seed extract for 23 yrs soon and if I had anything to do with it, everyone would take it. Improved health overall. Could get many off drugs or not have them go on them. I take virtually no drugs, but thyroid and BP and ibuprofen...and many supps and this OPC which is the class of antioxidants which grape seed extract falls into.

I'm no doctor but love to help others. Do your research.

And may prevent cancers, we were told this back in 1995 when this OPC came to our attention. I'm going on 79 and all in all very healthy...have a lot of OA and last place for it to go was my right foot ankle....but I also believe a lot of damage to my body from hip replacement in 2010. Lots of stories, but my health is pretty darn good.
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Old 06-03-2017, 08:28 PM #7
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Quote:
Originally Posted by Rosie33 View Post
I totally agree with the excellent advice Protector gave you. I've had idiopathic neuropathy for well over 20 years, and I've learned to live with it. I thank the Lord every day that the cause of it is not diabetes.

The neurologist will probably want to do an EMG test. It may help you to find the cause, and yet it may not. There is no known cure, and because it's idiopathic there is no way of knowing what is causing it. One doctor told me it was called idiopathic because the idiot doctors don't know what is causing it. He said that to put a smile on my face.

You have come to the right place. Keep coming here and you will learn so much from how vitamins, minerals, and nutrition may help to alleviate symptoms. It's a great comfort to have the support of others who are willing to share and support their own experiences with this mysterious #%&#*%# affliction. Stay well and God Bless


Thank-you Rossie33. I have been on a mission to lose weight and start supplementing with various vitamins and minerals. What is an EMG? - douglas
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Old 06-03-2017, 08:33 PM #8
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Quote:
Originally Posted by Protector View Post
There are many visual and mechanical standard neurological tests they will perform during an initial checkup. After that they usually start with a battery of blood tests looking for any abnormalities that can damage the nerves.

They also, depending on your symptoms, may recommend some MRI's searching for possible compression issues. There are countless other tests if the easy ones come back negative, but the doctor will decide, depending on your symptoms, if they are worth pursuing.

If all your results over time are normal, the definitive test for small fiber neuropathy is the skin biopsy. A small plug of skin, usually from the thigh and ankle, is sent to a lab to count nerve fiber density.

Keep in mind, this process usually takes many months or more. Believe it or not, the symptoms your experiencing sometimes go away by themselves. I did not have a skin biopsy until more than a year after symptoms started. And sometimes people with symptoms show normal nerve density.

So Rosie33 also gave you excellent advice. This forum is an wealth of valuable information. The search feature rarely fails to provide answers to many questions you will encounter. So search away, if you don't find your answer, just ask.
Thank you for helping me. I am just afraid - besides my tinnitus, thank the Lord I am healthy. I dont want to be sick. The plug extraction sounds painful.- douglas
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Old 06-03-2017, 08:54 PM #9
gdg111 gdg111 is offline
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Quote:
Originally Posted by caroline2 View Post
Grape Seed Extract: How Healthful Is It? - Medical News Today[/url]

Grape seed extract let a friend throw away gabapentin a few yrs ago. She dealt with what the doctors told her was ideopathic neuropathy, but later her daughter found it was from statin drugs, years of the drugs. That's a whole other topic.

I've been taking grape seed extract for 23 yrs soon and if I had anything to do with it, everyone would take it. Improved health overall. Could get many off drugs or not have them go on them. I take virtually no drugs, but thyroid and BP and ibuprofen...and many supps and this OPC which is the class of antioxidants which grape seed extract falls into.

I'm no doctor but love to help others. Do your research.

And may prevent cancers, we were told this back in 1995 when this OPC came to our attention. I'm going on 79 and all in all very healthy...have a lot of OA and last place for it to go was my right foot ankle....but I also believe a lot of damage to my body from hip replacement in 2010. Lots of stories, but my health is pretty darn good.
caroline2: Thank-you for this information. How much do you take? I would most definitely try it - douglas
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Old 06-04-2017, 10:00 AM #10
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Default Welcome gdg111 :)

Quote:
Originally Posted by gdg111 View Post
Thank you for helping me. I am just afraid - besides my tinnitus, thank the Lord I am healthy. I dont want to be sick. The plug extraction sounds painful.- douglas
The skin punch biopsy is probably one of the easiest things I had done on the long road of finding out what is wrong.

I have severe small fiber neuropathy dx'd with the skin punch biopsy. They use a small needle to numb the area and then take a 3mm (I think) piece of skin......put on a Band-Aid and off you go ! Done.

Debi from Georgia
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