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I went for my follow up with my new rheumatologist. She had told me after the first visit to consult with a Columbia neurologist who specializes in small fiber neuropathy. This new neurologist took my files, read through everything and determined matter of factly that I definitely have Ehlers danlos syndrome and autoimmune disease on top of it. The rheumatologist can't say she agrees that my full body neuropathy is for certain Ehlers danlos syndrome and also she isn't even 100% sure if it is autoimmune despite circulating antibodies. So I'm left at.... idiopathic as far as her opinion is concerned. She also said that I have enthesitis after feeling around my joints. What a day.


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