Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-01-2017, 11:26 AM #13
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 793
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 793
10 yr Member
Default

Yes, my engineering degree didn't quite prepare me for debugging the human body.

Please take this with a grain of salt and understand that every one of us is genetically unique with our own set pf problems, but here are the supplements that I think have helped me:

- High quality fish oil - 1400 mg/day (Google "ER stress fish oil")
- R-Lipoic Acid - I tested low (Read MrsD's posts on it, though. I don't think she's a fan)

I mention these two because when my SFN first hit, acutely, I was a mess. When I started the RLA, I feel it dialed back a notch. And then increasing my fish oil intake seemed to help even more.

I've also recently started taking a high quality biotin supplement which seems to be straightening out hypoglycemia and metabolic issues I was having. I have a rare genetic mutation that causes this. I don't think the biotin is helping the neuropathy, though. I had been hoping it would because extremely low levels can cause profound neurological problems.

My TENS unit seems to help me quite a bit at night. It cycles on any off at a one hour interval. I only need to use it when I'm really flaring. I crank it up, and it seems like that sensation produced by the current is all my brain processes. And because I know that current is SUPPOSED to be there, it doesn't register as a problem like all the other neuropathic weirdness and discomfort does. I don't pretend to understand it well, but I'm thrilled to have that tool in my arsenal.

Oh, and the magnesium cream or spray I use on my feet seems to help when they're bad as well. I also think oral magnesium helps the crazy "internal twitching" I feel in my legs.

Quote:
Originally Posted by Apex Clipper View Post
Hi Janie, ahh yes, if only our bodies could be debugged as logically as I used to debug communication systems. Not quite the same I'm finding :~)

I was wondering which supplements or processes you listed were the most effective for you?

When I started getting significant numbness in my right foot I brought out a TENS unit that I purchased years ago for a lower back issue. On first application to the numb area on my foot I couldn't even feel the current on the highest setting. Did a 30 minute session anyways. 24 hours later on repeat I now had sensitivity on a 1/3 intensity setting. It's a temporary affect as I'm sure you know.

Last edited by janieg; 07-01-2017 at 11:47 AM.
janieg is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
beatle (03-16-2019), madisongrrl (07-01-2017), mrsD (07-01-2017)
 

Tags
appearance, change, hands, normal, skin


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly diagnosed BFS BullardLA New Member Introductions 2 01-08-2016 01:22 AM
newly diagnosed musiq78 Aneurysm 2 03-30-2014 08:52 PM
Newly diagnosed editor89 Peripheral Neuropathy 2 02-17-2014 03:11 PM
Newly diagnosed KristinB77 Reflex Sympathetic Dystrophy (RSD and CRPS) 10 01-26-2014 02:56 PM
Newly diagnosed Mist8012 Occipital Neuralgia and other Cranial Neuralgias 0 08-03-2012 09:23 AM


All times are GMT -5. The time now is 05:28 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.