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-   -   Another ? about my NC/SSEP? (https://www.neurotalk.org/peripheral-neuropathy/24804-nc-ssep.html)

daniella 08-01-2007 06:23 AM

Lizajane I thought my diagnosis was peripheral neuropathy and that they want to treat it like Rsd. I just don't get why for 6 months except a few times that only lasted a short while it was in my left and now the pain is also in the right again but won't go and the pain is way worse way worse. I have no leg to rely on for taking the pressure off. I'm still pushing myself around but now with the right so bad I fear being unable to walk but I'm self talking to get through. I will say I'm feeling hopeless in pain and having to face the day with both legs in such bad pain and I feel it is from doing what they told me. Lizajane I have most of the copies of everythig and sent for the other ones. For the bloodwork the only off was white blood count low,high liver high and B12 high. I don't think my blood work is a good indicator because people with ed or past often have misleading results. In all my years of anorexia I had the same results and even when I went into the cardiac unit for a week my bloodwork showed liitle. I will ask about the tap at my next apt. I just don't know how much more I can go through or how many different types of pain clinic to go to. I had such hopes in cleveland clinic and I don't feel any better other then it showed me to push but with that my right leg is worse. I don't like going to places or doc apt to get worse. Thanks and Sue you have the best humor. My friends and I wanted to take a hip hop class I hope oneday I can still. Right now I will just settle to be in no pain.


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