I know many of you have been wondering when help will be available via ARA290 (Cibinetide) so I wrote directly to a Co. rep. below is the answer I received.

"I am so sorry to hear about your condition. The stories that patients like yourself share are heartbreaking, and we are doing our best to get this drug to the patients. Unfortunately, it will be at least 3-4 years until we receive FDA approval. If you'd like, I can keep your contact information on file and contact you should we begin enrolling for a clinical trial."