NeuroTalk Support Groups - Weird neuropathy

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- - Weird neuropathy (https://www.neurotalk.org/peripheral-neuropathy/248543-weird-neuropathy.html)

Hi Guys,

I am male 34 and from Germany and I finally found someone with my symptoms.

It started almost one year ago with a buzzing sensation in my right foot 1 sec buzz 1 sec off). This lasted for 5 days paused for approx. 2 weeks and came back the same way. It always was better in the morning and became worse over the day. Some days later I noticed that the feeling was somehow related to touches. If i wore long trousers it feels strange, if I wore shorts it was almost gone. After 2 months I realized that when I touch my leg (up to the beginning of my bottom) i get this buzzing sensation in my foot, right side worse than left side.

Neuro thinks it could be anxiety but he cannot exclude some central or peripheral nerve issue. Tibialis-SEP is delayed on the left side (but was already on the first date at the neuro when my symptoms were only on the right side). Furthermore, neuro exam was fine. Since the neuro did not suspected something "severe", I did not have a MRI. So I accepted this problem until I found this posting...

Do you have any new findings?

Thanks a lot!

Nothing new here, German, but welcome to our little club.

My new neuro had no new ideas. She ordered another brain MRI since my previous one showed a "non-specific finding" surrounding a subtle signal abnormality on the right side of my corpus callosom. The MRI showed the same thing, but no worse, so it was just another shrug.

Do you have any problems with your back or neck?

Quote:

Originally Posted by German (Post 1261601)

OP: I just had some on and off buzz in one of my feet a few weeks ago and it's gone. I tried to shake it out etc and it kept going but I notice now it's gone. I'd say the nerve damage issues I deal with are from 2 surgeries I've had and advancing osteoarthritis. I live with it and don't go seeking doctor's advice...they don't know. I've learned more here than anywhere and with supplements I take...and for me I'm aging. I don't take meds per se, but the couple I do take, who knows if they cause some of the nerve issues.

Quote:

Originally Posted by dogwalker (Post 1247769)

I don't have quite the same referred sensation with vibrating, but something that is maybe similar. When scratch my head or neck, the thigh on the opposite side gets shivers. Also when I sneeze, I get shivers in both thighs. I mentioned it to my neuro and she was perplexed too!

Hi, my legs feel "shivery" with yawning and scratching anywhere on my body as well as other things, but the oddest one is when I am watching something exciting on TV. Recently when I was watching black panther at the cinema they were going crazy during the action scenes, very odd!

Quote:

Originally Posted by Heldo (Post 1261689)

Recently when I was watching black panther at the cinema they were going crazy during the action scenes, very odd!

This is a response your over-sensitized nervous system is having to the adrenalin you're producing when excited (or scared). You'll probably find that stress will make your symptoms worse as well.

Quote:

Originally Posted by becazican (Post 1247655)

I've been diagnosed with sensimotor poly neuropathy, ncv showed it emg was zero or clean. Neuro dr blamed it on diabetes, a1c has never been over 6.4, and b6 toxicity, over twice the high normal, I don't take supplements. Getting all kinds of cold feeling down my thighs, bit toe and second toe and little toe numb, feel like there is cement in my balls of my feet. Just recently my gp order MRI of my lower spine to show bilateral l4-l5 and l5-s1 compression on nerves. Also my spinal column is much smaller than the average person genetic defect. Also been having twitches in my leg, don't know whether that is from anxiety or nerve thing. Also when i rub my thighs and put my pants on my feet vibrated, looked it up its called pallesthesia. Made the mistake of using dr google about twitching and als popped up now I'm scared like hell.

I have had neuropathy in both feet for 25 years, very painful. While its diagnosed as idiopathic, I am positive it originated in the low back. I have also had low back pain over a longer period of time. I would get steroids injected in low back for pain control. Immediately after each injection my foot pain would disappear for a few hours!