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Old 07-31-2007, 04:59 PM #11
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HI Mel,
It sounds like the rules are still the same as when you and Alan got signed up, from what the guy at National Institute on Disability and Rehabilitation Research told us this morning. I'm going to go ahead and sign all the paper work and get it sent in and hopefully work part time for a while and see how things go.
The new pain med...Balacet 325 is helping with the pain. I have to take 1 1/2 pills 4 times a day but at least it's helping....but man does it ever make me tired. Seems ya can't win with pain meds!
Hope you and Alan are having a good day. I have infusion #4 tomorrow afternoon.......the fun never ends! LOL
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-31-2007, 05:10 PM #12
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HI Bob,
I totally understand what you are saying. I'm not planning on discussing my PN with coworkers......who haven't been supportive up till now anyway. I know everyone will ask (because they're nosy) why I was out the last 5 weeks of school last school year.......they'll just have to wonder!
I'm SO thankful for all of you here who DO understand! It's nice to know you're not alone in all this!
Gina,
I plan on being careful when I return to work. I know I just can't do the things I used to do before, I just can't.
I hope you are doing better.....and that the pain isn't too bad.......
__________________

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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-31-2007, 05:29 PM #13
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Hi Roxie, talking from my own experience, be carefull who you confide in and don't trust anyone that includes your boss, decisions that you make now can affect the rest of your life, just tread carefully and you will be right.
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Old 07-31-2007, 07:08 PM #14
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Sorry, I didn't realize it had already been discussed.
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Old 07-31-2007, 08:06 PM #15
shiney sue shiney sue is offline
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Default Roxie

yes be very carefull who you talk to. Bob and Brian are so right about that.
My youngest son is blessed,he know's how to fill out paper work. He
know's how to deal with the Gov. It's terribal what they put some people
through. I've seen some people,myself included have no problem at all.
And other poor souls battle for years. You seem to be going in the right
direction. I'm a Diabectic but i have polyneuopathy's mine was just not
judged by the diabetes alone. Get all of your paper work from your Drs.
and get a Dr. who will be willing to help you through this,some can't or
won't. Good Luck your heath must come first. Sue
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Old 07-31-2007, 10:21 PM #16
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HI Brian, That's ok. I know it's going to be difficult to avoid the question at school as to why I wasn't there the last 5 weeks last school year and now (hopefully) returning working only half days. My school is a gossip vine! I'm not even looking forward to returning.
__________________

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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-31-2007, 10:30 PM #17
shiney sue shiney sue is offline
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It was that way when i was a nurse, but could get pretty funny if
if you were not the one being talked about. Sue Let's talk about Brian
now he looks soft and sweet, thing so???
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Old 07-31-2007, 10:43 PM #18
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Sue.......that's so very true......and that long tail! LOL LOL
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 07-31-2007, 11:12 PM #19
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Thanks Sue, now all i have to is convince the ones that really know me now that is going to be hard
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Old 07-31-2007, 11:17 PM #20
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Default Sue and Roxie about Brian?

I HAD to chuckle, but, at the same time Brian's so nice - I blushed {and it definitely wasn't a hot flash!}

Do keep any possible disability issues as lo key as possible for your own protection ...look at what all has happened to SeamsLikeStitches ? Who has been very quiet and probably very busy...I hope.
However, when things get truly impossible-DO speak up to the appropriate people about what all can be simply 'fixed' or changed.
As for being careful? That is the best way to be! Goodness knows how many of us get into trouble and fall when we get totally distracted. That makes us one bunch of slower, more thoughtful and careful planners about EVERYTHING we do...every single thing... But, we do tend to muddle thru it all!

So much else to think about other than what you WANT to think about?
Good thoughts a'plenty for now - j
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