NeuroTalk Support Groups - Mrs D, Rose, anyone? I need some guidance

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- - Mrs D, Rose, anyone? I need some guidance (https://www.neurotalk.org/peripheral-neuropathy/249-rose-guidance.html)

Between all the meds and vites...

I have to admit that after scrutinizing any part for over 2 minutes, I DO get cross-eyed, when I push it, I get brain-fried. Few humans have the 'gift', I am thinking. I've always admitted I do NOT. The 'easy out, one-pill' concept does appeal, but we all know reality intrudes. Of course, that would all be far too simple!?! But, I've other talents that help compensate [I sure hope!].

Oh, Melody, COULD WE? It'd be fun and the feet wouldn't hurt!

Hugs and fuzzies to all! - j

Between all the meds and vites...

About the "everything in one pill" idea....

I know that compounding pharmacies can make an "all in one pill" out of prescription medications - combining several medications into one pill so that it is easier for a patient to take all their needed meds in a single pill...

I wonder if compounding pharmacies can do the same for vitamins/supplements? or if there is a vitamin/supplement coupounding pharmacy/company somewhere?

Quote:

Originally Posted by Wittesea (Post 3506)

I've wondered about this, too. I suspect they CAN do it.... but how much of a premium would it cost? And of course, the biggest part is figuring out how much of each thing is appropriate for our very individual needs... probably the toughest part of the equation.

Cara

Well, I'm not sure if any one else cares, but I just found the bit about P5P, quite by accident...I had emailed it to myself some time ago and was clearing out my inbox...

Quote:

Safety, Toxicity, and Side Effects
The use of supplemental P5P has not been associated with toxicity, although the inactive form, pyridoxine, has been associated with reports of peripheral neuropathy.[45] One hypothesis is that pyridoxine toxicity is caused by exceeding the liver's ability to phosphorylate pyridoxine to P5P, yielding high serum levels of pyridoxine which may be directly neurotoxic or may compete with P5P for binding sites, resulting in a relative deficiency.[46]

Mpofu et al reported electrophysiological and neurological examination of 17 homocystinuric patients who had been treated with 200-500 mg pyridoxine HC1 daily for 10-24 years, and found no evidence of neuropathy.[47] Most reported cases of neuropathy associated with pyridoxine supplementation have involved intake of at least 500mg/day for two years or more.[48] While there is no doubt that vitamin B6 can be neurotoxic in gross excess, there is considerable controversy over the way in which toxicological data have been translated into advised limits.[8]

http://www.findarticles.com/p/articl..._6/ai_71948217

100 is pretty conservative, but if you want to be extra certain, the P-5-P type is much better. Some people can't convert the cheap old pyridoxine to a usable form so it piles up on them.

Too much or too little B6 can interfere with nerves.

I haven't read the whole thread, so sorry if this is redundant.

rose

Rose, the #'s added up, under my nose!

The b-6's seemed innocous at first. The combo added up to over 680mg per day. I really don't know how such a lapse occurred other than: a preoccupation w/getting good numbers of other stuff into me and a preoccupation with other medical issues...It was only a fluke that noticed the b-6 added to another supplement in a 80mg quantity [I'd not noticed before...] that got the grey cells working albiet not at optimum speed.
Since then, I've dropped the multi [had waay too much-580mg] and just taking the other essentials B-12, Calcium w/D & magnesium & Omega Oils...

I'm thinking IF I've asorbtion issues [something hard to prove/test] I'll have to go the Vite-By-vite add on as needed route. If I'm not mistaken that's what brought on the whole 'wish there was one simple pill' discussion. I certainly want to do this safely, as we all do, at the same time...I kick myself now [often] at overlooking this aspect I overlooked!

The only sources that look minimally safe rite now are -pre natal vites..that I can add on the specifics as needed. However they are pricey...I'm about to check out Kids vites next. Any Ideas?

Glad you are back, hope where you went was as beautiful as I imagine, and let's get on from here? Don't ever ask where 'here is', as we may find out!

Good thoughts ever and always! - j

anyone taking Shaklee Food supplements?

I have been taking Shaklee and wonder just how good they really are and the price makes me wonder too? any thoughts on the subject?
I tried the soy protein powder and I think it was making me sick. :confused:

Unless it is prescription, I don't believe they can sell over 150 in one capsule or tablet in the United States.

Most multivitamins have A tiny amount of B6, and now one can get B complex containing 20 -50 mg and at least part of that P-5-P. I got my mother on Source Naturals Coenzymate B complex because she needed to keep the B6 extra conservative and the types of the vitamins are good ones.

rose

Quote:

Originally Posted by dahlek (Post 3469)

I've tried to be soo careful..and well, wham! I really did it to myself! I was taking almost 700 mg between the super-multi and a b-complex. Since I've stopped, I'm feeling better, with the gravelly/tingle stuff on the fingertips and a bit of extra somethings in my insteps.
I really can't think what was going on in my mind! I think I was so focussed on the B-1 & 12's that the rest of the brain went into outer space.
I have to ask tho, why didn't the Docs notice this? I list all this stuff on my meds sheet [updated whenever there's a change...& its lengthy]. There are notes in my records questioning asorbtion problems..maybe I just thought It wouldn't get taken into the system...
Besides you folks, is a nutritionist one to formulate the perfect combo? I'm beginning to feel scattershot in my approach. When I'd thot I was methodical.
Soo, I guess I've got to re-read all the vitamin stuff I've ever learned [& hopefully BT stuff] soon.
What an adventure! Thank you all! - j

Wow, that is really a lot.

I was posting on a forum where a fellow from Norway (or Denmark, I forget) was saying that B vitamins are dangerous. I kept disagreeing. But then I read the study he was referring to and saw that it was one I had mentioned on my site when it came out because it said that B vitamins weren't any help in lowering homocysteine levels.

So I read the study and low and behold they were giving huge huge amounts of B6 and just the smallest, most miniscule amount of B12. They had more folic acid in the doses, if I remember correctly, than they had B12... and Folic Acid disguises B12 deficiency.

That study got evening news coverage... and none of the coverage was accurate about what had actually been administered, and what the actual effects were for the specific vitamins that were administered.

It just made me so angry...

:mad:

Well, thanks for this chance to vent!!!!!!

Here's the link to my page talking about the study:
http://health-boundaries-bite.com/B1...t-Attacks.html