Hi ,

Just thought i would give you an update on my situation.

I haven't heard back from Oxford yet with genetic testing. It could take a few more months. I've just seem my local neurologist. He is putting me forward for the 100,000 Genomes Project they are currently working on here in the UK for people with rare genetic diseases. It may take a while, i have to go to London and see my neurologist there first and will take the bloods.

Does anybody know anything about this. I hope this will finally give me some answers, but then again it may not!