[JoannaP79]

Hi all,

Haven't posted in a while. Things have been very tough with trying to get anyone to confidently treat my sjogrens. But the actual reason I'm posting is for a friend. Like me she has sjogrens, she has wasting, autonomic issues, a positive skin biopsy on one leg but other was negative and more recently a muscle biopsy showing denervation and renervation. She has seen a rheum specialising in sjogrens who wont take her on for treatment and suggests it needs to be a neurologist. She has seen a few neuros and has one at Mayo who appears clueless to what sjogrens can do. Like me, she has been told she needs to do more excercise and manage her anxiety in the past as if this is the cause of her issues!!

Are there any sjogrens aware neurologists near to California that any one can recommend. My friend is losing all strength and hope to carry on. I understand her despair because of the ignorance and lack of medical knowledge regarding sjogrens most neuros appear to have. She has insurance