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Old 10-06-2019, 12:12 PM   #11
Suzi-Q
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Join Date: Sep 2019
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Quote:
Originally Posted by ElaineD View Post
An Update:

I currently take 3 mg of LDN in the evening, and sleep almost free of pain.

I wake with generalized neuralgia (from my severe osteoarthritis, I guess). So am experimenting with a morning dose of 3 mg of LDN.

I'll meet next Monday with my Duke Pain Specialist and get his feedback about the daytime additional dose of LDN. It may not be a good idea, medically, but it does work!

I have occasional nausea but it isn't bad, and doesn't last all that long. Otherwise most of the side effects are gone.

Regards, ElaineD
Hi Elaine - I know this is an old post, but if you get it I was wondering if you're still on LDN and how that's working for the PN.

I've been on LDN for 4 years for other pain issues related to ME/CFS.

When I was recently diagnosed with "severe" Idiopathic Axonal Polyneuropathy my neurologist seemed surprised that I turned down his offer for pain medication because I wasn't in any significant pain. It didn't dawn on me to mention that the LDN I've been on for years could be possibly be the reason for that.

The PN has been slowly progressed for least 7 years and though I have significant problems with numbness, balance, fatigue, and autonomic nerve related problems, the pain thus far has been minimal. Just thinking the LDN may be why.

I had tried going off LDN in the past but my back pain returned with a vengence.

1 mg does the trick for me - after trying doses up to 4 mg.
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