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Old 11-09-2017, 12:57 PM #1
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by ElaineD View Post
The nerve damage from my Profound Peripheral Neuropathy causes difficulty with the small capillaries in my feet.

My toes are dark purple most of the time. If I expose them to hot water they blanche white.

Since the circulation is markedly impaired my feet are usually icy cold.

Of course I can't actually 'feel' them very much. The sensation I 'perceive' is more like burning. But when I touch my feet that are frighteningly cold.

In addition, my feet feel rather like I have ski boots on. So when I try to get under the covers, I get tangled up with my feet and have a hard time sorting things out. I do it best by looking at my feet so I can untangle the covers.

Wearing socks to bed helps a great deal with the discomfort.

I have severe SFN in my upper body (take 3600 mg gabapentin for the pain) but I don't have any problems with anything like Raynaud's in my hands.

It is the Profound PN that cause this problem in my feet.

I must take great care with my feet because injuries heal very very slowly. Usually it take three or four months for the smallest scrape to heal completely.

Regards, ElaineD
Thanks Elaine.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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