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01-10-2018, 05:53 PM | #111 | ||
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So happy to hear this! Now you need to get the insurance approval and begin the work! Hope all goes well on both counts. Also like we have been saying...." Keep your expectations realistic".
So I have a couple questions. Is this a neurologist or some kind a doctor, chiropractor or rehab facility? There are a few neuropathy centers around here but they don't take insurance and seem more like alternative medicine type of clinics and physical therapy doesn't even seem to be part of the process. I am very happy for you. I am so excited to think there is hope. |
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"Thanks for this!" says: | PamelaJune (01-11-2018), Wide-O (01-11-2018) |
01-11-2018, 02:01 AM | #112 | |||
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On the other hand, I can't explain how I can walk without any visible problems without properly feeling where my feet "are". Try knitting with a sleeping arm for instance. Of course, not all feeling is gone, and that became clear when they gave me an epidural a few weeks back. Then you really feel how awful it is to have no feeling at all from your legs. It was scary even - although I knew it was just for another 10 minutes. Yet, even though I should not have been able to feel *anything* at that time, I did still feel some tingle from the place that usually hurts most. Part of the whole PN thing is in the brain, not just the physical nerves - is my guess. (think of people with phantom pains in limbs that were amputated long ago... my buddy in collage had his full leg amputated at 17 after a motorcycle accident, yet he sometimes complained about pain or itches in his toes - which freaked me out at the time! I even thought he was making fun of me.) And in some way your situation sounds more easily "curable". Fingers crossed! Edit: I do hope they do the water & electricity thing at separate times. |
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"Thanks for this!" says: | PamelaJune (01-11-2018), SecondChances (01-11-2018) |
01-11-2018, 02:58 AM | #113 | |||
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Interesting. This fits right in what we are discussing.
Sorry for the french, but I'll translate/summarize. Quote:
Google Translate Basically, the comparison is apt. Although tinnitus originates from physical damage - the condition is then caused by the brain reacting to that damage with producing its own sounds. (ringing, hissing, both or one or alternate ears) I have it too, and it's again stress influenced, is sometimes less, then comes back with a vengeance etc. A mechanical problem (ears/nerves in our extremities) as the cause but the brain adding to the problem (by inventing sound or inventing pain from parts that are not physically actually in pain (!). They managed to find how this works (finally), for tinnitus at least, and are experimenting with stimulating parts of the brain that could "reset" this. Quote:
I can easily see a similar solution for the PN pains we feel. "My toe feels like it's being clipped off by pliers and then set on fire" says brain. But the toe is perfectly fine (although you should do your nails! ) so the solution is to make the brain "behave", not to "make up problems". |
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"Thanks for this!" says: | PamelaJune (01-11-2018), SecondChances (01-11-2018) |
01-11-2018, 04:06 AM | #114 | ||
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That is great news, Icehouse! You are so inspiring! Here is my update. I had been getting decompression of the spine and laser treatment done several months ago (to the tune of over $6000). I had never had my back or neck "cracked" (adjusted) so I started doing that with a different chiropractor a few weeks ago. I was suspicious that the decompression doctor wouldn't show me my x-rays so I had them done by the second chiropractor. They were confirmed - my lowest (pelvic) vertebrae is basically bone-on-bone. So my neuropathy could be unrelated to my history of alcohol abuse. He said that it would have had to been pretty bad trauma to the spine (if it was an old aging thing, all of my vertebrae would be affected, which they are not) --- and he asked me if I had been in a car accident or something similar, which I have not, ever in my life. I did have an incident of abuse that I won't elaborate on here, back in 2006/2007. It sure was eye-opening, and I addressed it with the abuser, who doesn't recall the incident at all, but at this point I don't care. I am continuing decompression with the first chiro and adjustments with the second chiro, feeling some tingling in my feet, and hopefully something good comes of this. Still faithfully taking the vitamins and hoping for the best, we shall see.
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01-11-2018, 09:05 AM | #115 | |||
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The only downfall is I have to pay out-of-pocket about $2000 before my insurance covers its 70% so I will have to be frugal for a couple months This may be hard as I like my prime rib and oysters on a half shell..... |
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01-11-2018, 09:10 AM | #116 | |||
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But, the the Doc in 2011 said PN and the therapist said PN yesterday while he was scratching his head.....lol Phantom limb has always intrigued me too. I know a guy in Canada that lost his arm in a snowmobiling accident and the "itching" was just plain irritating... Talk about an itch you can't scratch!!! |
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01-11-2018, 09:10 AM | #117 | ||
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That is exactly how it all went down with me. I had so many warnings, I knew what was happening yet the more I worried the more I drank. It defies logic but the alcoholic mind is not logical. I WILL confess that last night when reading Icehouse's good news I thought "Oh goody, now I can get fixed and drink more". Ugh... fortunately it was just a very fleeting thought but that is how my crazy head still thinks.
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"Thanks for this!" says: | PamelaJune (01-11-2018), Wide-O (01-11-2018) |
01-11-2018, 09:16 AM | #118 | ||
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We are already on page 12 of the Alcoholic Neuropathy Part 2 thread. How cool is that? This is a wonderful support and I am always so glad to know you all are out there. If there are any lurkers please join in. (I lurked for years while drinking but was too ashamed to post).
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"Thanks for this!" says: | PamelaJune (01-11-2018), Wide-O (01-11-2018) |
01-11-2018, 09:31 AM | #119 | ||
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This is all very exciting. We are all rooting for you! Last edited by SecondChances; 01-11-2018 at 09:32 AM. Reason: sp error |
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"Thanks for this!" says: | PamelaJune (01-11-2018) |
01-11-2018, 09:40 AM | #120 | |||
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I skipped the Doctor part (sort of) by calling the rehab centre first and they told me I needed a "referral". So, I dropped by the Doc office and told the cute receptionist about my request. I also told her how I have been ignored by the Doc regarding my PN issues (totally true) and she wrote the referral on the spot and faxed it over. My Doc may find out about it...but that will most likely be after I switch primaries and go with a new guy in town. This is one of the downfalls to healthcare in the USA. It sucks. It's days like this where I miss my Canadian healthcare (I still have it, but I am not a resident so it's a little more complicated) but I have no plans on moving back north..... |
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